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Stephanie Monroe

Executive Director, AfricanAmericansAgainst Alzheimer's

Stephanie is Executive Director of African Americans Against Alzheimer’s, the first national network created specifically to respond to the disparate impact of Alzheimer’s on African Americans. By working nationally, locally, and through strategic partnerships, African Americans Against Alzheimer’s is raising awareness of the critical need to engage, connect, and mobilize to advance our national commitment to ending Alzheimer’s by 2025. One of the primary focuses of the network is a community-based initiative that works at the grass roots level to bring Alzheimer’s out of the shadows, dispel myths about the disease symptoms, and encourage greater participation in clinical research designed to more effectively prevent, treat, and eventually cure this dreaded disease. Much of this work is centered around a fully staged play called Forget Me Not which is entering its 5th year touring with the Network. Stephanie is a veteran political strategist, amateur photographer, Broadway enthusiast, and “Trekkie” who just wants folks to “Live Long and Prosper” before they are “Beamed Up”.

Bucket list item: Visit and eat through Italy

Favorite book: "The Bible"

Stephanie's Articles

If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do you have to keep moving forward.

Rev. Martin Luther King Jr.
  • June 6, 2019

    Summary- CHANGE Act of 2019

    With 5.8 million Americans affected by the disease, Alzheimer's is currently our

  • June 6, 2019

    Embracing a Comprehensive Theory of Change- Senate

    In 2019, Alzheimer's and other dementias will cost the United States an estimated

  • June 6, 2019

    Embracing a Comprehensive Theory of Change- House

    No longer a concern simply for later years, proactive brain health across

  • June 6, 2019

    Embracing a comprehensive Theory of Change- Full Congress

    UsAgainstAlzheimer's (UsA2) is a disruptive advocacy and research organization that has pushed

  • June 6, 2019

    The Case for Promoting Brain Health Equity

    By 2030, nearly half of all Americans living with Alzheimer's will be

  • June 5, 2019

    Creating Dementia-Friendly Faith Communities

    Fostering spiritual connection and meaningful engagement for those living with dementia and support

  • May 2, 2019

    Japan Roundtable Communique (Japanese)

  • May 2, 2019

    Japan Roundtable Communique

  • April 26, 2019

    Creating an Optimal System of Brain Health Care in the United States

    Preventing and effectively treating Alzheimer’s disease and other dementias are among the most important and urgent challenges of the 21st century.
  • April 26, 2019

    Creating an Optimal System of Brain Health Care in the United States-1

    Preventing and effectively treating Alzheimer’s disease and other dementias are among the

  • April 25, 2019

    Summary: Creating an Optimal System of Brain Health Care in The United States

  • April 10, 2019

    Press Release: UsAgainstAlzheime's Applauds the Bipartisan Introduction of the CHANGE Act, Critical Legislation to Promote Early Diagnosis of Alzheimer's

    The concentrating on High-Value Alzheimer's needs to Get to an End (CHANGE)

  • February 26, 2019

    Fact Sheet: Clinical Trials Awareness Toolkit

    A one-page flyer explaining the resources in the toolkit and how you

  • February 26, 2019

    Curing Alzheimer's: Clinical Trials are the Key

    Our comprehensive guide to clinical trials outlines everything you need to know

  • December 5, 2018

    Innovation in Alzheimer’s Treatment: Early Detection and Diagnosis Will Empower Global Health Care Systems

    Improving Detection and Diagnosis of Alzheimer’s Disease and Related Dementias: An Urgent

  • October 15, 2018

    The Alzheimer's Crisis

    Alzheimer's is not a normal part of aging - it is a

  • October 15, 2018

    Disparities: Shifting Demographics Place Communities of Color in the Crosshairs of Alzheimer's

    According to to researcher's, the number one risk factor for Alzheimer's is

  • October 15, 2018

    Alzheimer's and Dementia Clinical Trials

    The process of developing new drugs and treatments is long, expensive, and

  • October 15, 2018

    Faith Coalition and Clergy Network Background

    The ClergyAgainstAlzheimer's Network and the Faith United Against Alzheimer's Coalition are diverse,

  • October 15, 2018

    The Eight Pillars of Brain Health

    Aging causes changes in all parts of the body, including the brain.

  • September 23, 2018

    A New Frontier in Paid Leave

  • September 20, 2018

    A-LIST The Pulse of the Community Vol. 2

  • April 5, 2018

    Blacks & Alzheimer's Awareness Research Top Priorities

    The impact of Alzheimer’s disease on the Black community is cause for

  • April 5, 2018

    Post and Courier - Black Americans are Twice as Likely

    Even though Vernon Williams first began to notice the signs of Alzheimer's

  • April 5, 2018

    Ebony - Forget Me Not

    When Frank Self of Waxhaw, N.C., noticed that his wife, Shirley, was

  • April 5, 2018

    African Americans are more likely than whites to develop Alzheimer’s. Why?

    Gary Williams thought he had found a glimmer of hope. Six months earlier, his wife,

  • March 8, 2018

    Creating Dementia Friendly Communities

    This paper suggests ways to foster spiritual connection and meaningful engagement for

  • February 28, 2018

    Single Endpoint for New Drug Approvals for Alzheimer’s Disease

    The Food and Drug Administration’s (FDA) approach to approving new medicines for

  • February 28, 2018

    LatinosAgainstAlzheimer's Issue Brief

    This issue brief is an educational resource that frames the impact of

  • February 28, 2018

    Attitudes, Level of Stigma, and Level of Knowledge about Alzheimer’s Disease among Hispanic Elderly Adults and Caregivers, and Alzheimer’s-Related Challenges for Caregivers.

    This executive summary from LatinosAgainstAlzheimer’s coalition member the National Hispanic Council on

  • February 28, 2018

    La crisis del Alzheimer entre los latinos: Un resumen

    A fact sheet that outlines the impact of Alzheimer's on the Latino

  • February 28, 2018

    Let's Talk about Caring for a Person with Alzheimer's Disease / Hablemos del Cuidado de una persona con Alzheimer's

    A bilingual Alzheimer’s resource guide for caregivers from our friends at the

  • February 28, 2018

    Let's Talk About Alzheimer's Disease / Hablemos de la enfermedad de Alzheimer's

    A bilingual Alzheimer’s resource guide for families from our friends at the

  • February 28, 2018

    Latinos & Alzheimer’s Disease: New Numbers behind the Crisis

    This project marks an important collaboration among the USC Edward R. Roybal

  • February 26, 2018

    WWW Campaign Fact Sheet

    Imagine a world united by women against Alzheimer’s.

  • February 26, 2018

    WA2 Fact Sheet

    Imagine a world united by women against Alzheimer’s.

  • February 26, 2018

    WA2 Leadership Council Overview

    Imagine a world united by women against Alzheimer’s.

  • February 8, 2018

    NIA: Understanding Alzheimer’s Disease

    Many older adults and their families are faced with Alzheimer’s disease. It’s

  • February 8, 2018

    NIA: Understanding Alzheimer’s Genes

    A person’s genes can affect how likely they are to develop Alzheimer’s

  • February 8, 2018

    NIA: Understanding Memory Loss

    It’s normal to forget things once in a while. However, forgetting how

  • February 8, 2018

    NIA: Participating in Alzheimer’s Research

    This is an exciting time for Alzheimer’s disease clinical research. Thanks to

  • February 8, 2018

    2017 AAN Fact Sheet

    Alzheimer’s is one of the great health crises of our time. An

  • February 8, 2018

    NIA: Caring for a Person with Alzheimer’s Disease

    This guide is for people who care for family members or others

  • February 8, 2018

    RA2’s Phase 3 Pipeline Analysis (March 2016)

    Success in drug development for Alzheimer’s disease has been elusive. Recent analysis

  • February 8, 2018

    RA2’s Phase 2 Pipeline Analysis (September 2016)

    A Diverse Phase 2 Pipeline of Alzheimer’s Drugs Promises New Innovations and
  • February 8, 2018

    The Costs of Alzheimer’s and Other Dementia for African Americans

    This report estimates the costs of Alzheimer's disease for African Americans and

  • February 1, 2018

    Latinos & Alzheimer’s Disease: New Numbers behind the Crisis

    Projection of the costs for U.S. Latinos living with Alzheimer’s Disease through

  • January 18, 2018

    Annual Report 2015

    In the eight years since our founding, UsAgainstAlzheimer’s has been proud and

  • January 17, 2018

    Brain Health is Women's Health

    What is the actual state of women’s knowledge about Alzheimer’s and other

  • January 16, 2018

    ResearchersAgainstAlzheimer’s Pipeline Analysis

    Alzheimer's drugs in development pipeline - Phase 2 Alzheimer's drugs and estimated

  • January 16, 2018

    Millenials and Dementia Caregiving in the United States

    This issue brief explores millennial caregiving in the United States with the

  • January 11, 2018

    Forget Me Not

    Ebony examines how families can best manage the illness that breaks so

  • October 5, 2017

    Hiding in Plain Sight

    Social and Demographic Trends That Will Exacerbate the Impact of Alzheimer’s: A Nationwide

  • October 2, 2017

    Veterans and Alzheimer’s: Meeting the Crisis Head On

    A newly released analysis about the disproportionate impact of Alzheimer’s on veterans

  • January 1, 2013

    National Plan to Address Alzheimer’s Disease

    Looking for information about Alzheimer’s disease? Helpful links: Alzheimer's Disease Basics Video,