Stephanie Monroe, Director of Diversity, Equity, Inclusion and Access

Stephanie Monroe

Vice President and Senior Advisor, Health Equity

STEPHANIE J. MONROE is Vice President and Senior Advisor of Health Equity and Access at UsAgainstAlzheimer’s, a national advocacy organization based in Washington, D.C. She also directs African Americans Against Alzheimer’s, founded in 2013 and the first national network created specifically to respond to Alzheimer’s disease’s disparate impact on African Americans. By working nationally, locally, and through strategic partnerships, African Americans Against Alzheimer’s is raising awareness of the impact of Alzheimer’s health disparities on communities of color and women, the need for greater minority participation in clinical trials to find better treatments and hopefully a cure, and the importance of all communities, especially those most at risk, to begin to focus on brain health and adopt risk reduction strategies that promote brain health and healthy aging.  

An attorney with three decades of federal public policy experience, Stephanie is former Assistant Secretary of Education for Civil Rights. Prior to serving in that position, she ended a 25-year career on Capitol Hill after holding a number of key staff positions in the United States Congress, including Chief Counsel of the U.S. Senate Committee on Health, Education, Labor, and Pensions, and Staff Director of the Senate Subcommittee on Children and Families.

In addition to her work in Alzheimer’s, Stephanie serves on the National Academy of Sciences Board for Children, Youth, and Families, addressing issues that impact vulnerable families, including health and education. She also advises academic centers, industry partners, federal agencies, and others on strategies to achieve inclusive participation clinical trials.

Bucket list item: Visit and eat through Italy

Favorite book: "The Bible"

Stephanie's Articles

If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do you have to keep moving forward.

Rev. Martin Luther King Jr.
  • April 17, 2024

    Symptoms and Treatment Needs of People with Dementia-Related Psychosis: A Mixed-Methods Study of the Patient Experience

  • April 11, 2024

    2022 Annual Report

  • March 8, 2024

    Care partner evaluation of the behaviors in the Cohen-Mansfield Agitation Inventory

  • February 2, 2024

    Developing and describing a typology of lucid episodes among people with Alzheimer's disease and related dementias

  • December 21, 2023

    Exploring the Complexity of Lucid Episodes in Dementia: Perspectives from Multidisciplinary Clinical Experts

  • November 1, 2023

    A Mixed Methods Approach to Understanding Spouse and Child Caregivers’ Experiences of Lucid Episodes in Dementia

  • July 24, 2023

    A-LIST Pulse of the Community – July 2023

  • July 12, 2023

    Caring for Dementia Caregivers

  • July 12, 2023

    A-LIST Pulse of the Community Vol 15, July 2023

  • June 20, 2023

    A-LIST Survey Results and Brain Health Academy

  • December 21, 2022

    Fiscal Year 2023 Omnibus Appropriations Bill Summary

  • December 15, 2022

    A-LIST Pulse of the Community Vol 14, December 2022

  • December 14, 2022

    Understanding Paradoxical Lucidity: Family Caregiver Interpretations of Lucid Episodes Among People With Late-Stage Alzheimer's Disease and Related Dementias (ADRDs)

    Understanding Paradoxical Lucidity: Family Caregiver Interpretations of Lucid Episodes Among People With

  • November 17, 2022

    A-LIST Pulse of the Community – November 2022

  • November 16, 2022

    Feasibility Poster

  • August 8, 2022

    2021 Annual Report

    With breakthroughs in treatment, a remarkable step forward in prevention, and a

  • July 5, 2022

    What Matters Most -- Attitudes Toward Dementia

  • July 1, 2022

    A-List What Matters Most Surveys

    A-List 2017-2022 surveys, updated July 2022

  • June 5, 2022

    Caregiver appraisals of lucid episodes in people with late-stage Alzheimer’s disease and related dementias

  • April 20, 2022

    Communicating Brain Health Messages with Latino and African American Communities

  • February 2, 2022

    NCD CED Timeline

  • January 28, 2022

    CDC Healthy Aging Letter

  • January 27, 2022

    Thank You Prevention Goal

  • December 20, 2021

    A-LIST Pulse of the Community - December 2021

  • December 3, 2021

    Creating Dementia Friendly Faith Communities

    Fostering spiritual connection and meaningful engagement for those living with dementia and

  • November 11, 2021

    Lessons from Covid

  • November 10, 2021

    Prevention Goal - Senate

    As Members of Congress who deeply care about the health of our

  • November 10, 2021

    Prevention Goal - House

    We write today to urge the Department of Health and Human Services

  • November 4, 2021

    A-LIST Pulse of the Community - November 2021

  • October 12, 2021

    UsAgainstAlzheimer’s Survey on Brain Health Summary of Findings (Final - October 13, 2021)

  • September 14, 2021

    Letter to HHS Sec. Becerra on Prevention and Risk Reduction of Alzheimer's

  • August 23, 2021

    Summary of Findings: UsAgainstAlzheimer’s Survey on Early Diagnosis and Attitudes Toward Use of a Disease-Modifying Alzheimer’s Therapy

  • August 9, 2021

    Symptoms and Treatment Needs of People with Dementia-Related Psychosis: A Mixed-Methods Study of the Patient Experience

  • July 23, 2021

    2020 Annual Report

    In these pages, you will find highlights of the game-changing accomplishments and tremendous

  • June 23, 2021

    A-LIST Pulse of the Community: Volume 8, June 2021

  • June 23, 2021

    A-LIST Pulse of the Community: Volume 8, June 2021

    The UsAgainstAlzheimer’s A-LIST® is an online community of more than 8,600 people

  • June 22, 2021

    Prevention

    Leave behind stressing the need for a national Alzheimer's prevention goal because

  • June 22, 2021

    Paid Leave

    Leave behind providing insight on the impact of paid family and medical

  • June 22, 2021

    Change Act

    Leave behind requesting to Concentrate on High-value Alzheimer's Needs to Get to

  • June 22, 2021

    Appropriations

    Leave behind requesting to increase federal investment in Alzheimer's disease and related

  • June 22, 2021

    Advocacy Day

    UsAgainstAlzheimer’s exists to conquer Alzheimer’s disease. Learn more about how we empower

  • June 22, 2021

    BrainGuide

    BrainGuide is a first-of-its-kind platform that empowers people with knowledge and resources

  • June 14, 2021

    Changing Face of Alzheimer's: A Survey on Burden for Caregivers from Communities of Color

  • June 14, 2021

    Changing Face of Alzheimer's: A Survey on Relationships of Caregivers of Color with Health Care Providers

  • June 1, 2021

    Place & Brain Health Equity Congressional District Data Brief

    A follow up to the 2020 report, UsAgainstAlzheimer’s and Urban Institute identified

  • May 18, 2021

    CDC Healthy Aging Letter - May 2018, 2021

  • May 17, 2021

    COVID19 and Brain Health: Advancing Equity for Caregivers & Communities

  • May 6, 2021

    UsAgainstAlzheimer's Letter to FDA on Pimavanserin (5.3.21)

  • April 28, 2021

    Paid Family and Medical Leave Joint Letter (NAC, UsAgainstAlzheimer's, The Arc)

  • March 11, 2021

    UsAgainstAlzheimer’s Survey #8 on COVID-19 and Alzheimer’s Community February/March 2021 Summary of Findings

  • March 5, 2021

    WA2 Leadership Council Overview

    Imagine a world united by women against Alzheimer’s.

  • January 27, 2021

    Summary of Findings: UsAgainstAlzheimer’s Survey on Attitudes Toward Use of a Disease-Modifying Alzheimer’s Therapy

  • January 22, 2021

    UsAgainstAlzheimer's Letter to FDA on Aducanumab (1.19.21)

  • January 13, 2021

    UsAgainstAlzheimer's NAPA Letter (December 2020)

  • December 15, 2020

    A-LIST Pulse of the Community: Volume 7, December 2020

    The UsAgainstAlzheimer’s A-LIST® is an online community of more than 8,000 people

  • November 15, 2020

    Place & Brain Health Equity: Understanding the County-Level Impacts of Alzheimer’s

    Social determinants of health (SDOH) have long-term, far-reaching, and not always obvious

  • November 14, 2020

    Place & Brain Health Equity: Understanding the County-Level Impacts of Alzheimer’s

    The effects of where people live, and the social determinants of health

  • November 3, 2020

    Caregiver Perspectives on the Burden and Impact of Agitation in Caring for Loved Ones with Dementia/Alzheimer's Disease

  • October 21, 2020

    UsAgainstAlzheimer’s Survey #7 on COVID-19 and Alzheimer’s Community Summary of Findings October 2020

  • September 30, 2020

    COVID-19 Survey #6 Infographic

  • September 24, 2020

    UsAgainstAlzheimer’s Survey #6 on COVID-19 and Alzheimer’s Community Summary of Findings, September 2020

  • September 18, 2020

    The fight against Alzheimer’s disease must never stop – not even in the face of the Covid-19 pandemic

    The Covid-19 pandemic and its sequels have taken over most aspects of

  • September 15, 2020

    #HispanicHeritageMonth2020 Reading List

  • August 18, 2020

    A-LIST Pulse of the Community: Volume 3, Spring 2019

  • August 13, 2020

    UsAgainstAlzheimer's Center for Brain Health Equity

  • August 4, 2020

    Letter to HHS Secretary Azar Urging Testing for All Staff and Residents in Long-Term Care Communities

  • August 3, 2020

    Congressional Action and Protecting Family Caregivers

  • July 30, 2020

    UsAgainstAlzheimer’s Survey on COVID-19 and Alzheimer’s Community Summary of Findings for July 2020 Survey (Survey #5)

    UsAgainstAlzheimer’s fielded its fifth survey on the effects of COVID-19 on people

  • July 30, 2020

    Research Survey Series Shows Effects of COVID-19 Shutdowns on Alzheimer’s Community, with Especially High Stress on Caregivers

    Advances in Geriatric Medicine and Research, July 2020

  • July 29, 2020

    AAIC 2020: Evaluation of What Matters Most in Existing Clinical Outcomes Assessments in Alzheimer’s Disease

  • July 29, 2020

    AAIC 2020: The Importance of Care Partner Input in Alzheimer’s Disease (AD) Drug Development

  • July 29, 2020

    AAIC 2020: Quantifying What Matters Most to Patients and Care Partners in Alzheimer’s Disease

  • July 29, 2020

    Quantifying What Matters Most to Patients and Care Partners in Alzheimer's Disease

  • July 29, 2020

    Evaluation of What Matters Most in Existing Clinical Outcomes Assessments in Alzheimer's Disease

  • July 27, 2020

    Treatment Patterns and Needs for Dementia-Related Psychosis Described by Patients and Care Partners (Caregivers)

    Treatment Patterns and Needs for Dementia-Related Psychosis Described by Patients and Care

  • July 27, 2020

    Dementia-Related Psychosis Symptoms and Impact from the Patient and Care Partner (Caregiver) Perspective

    Dementia-Related Psychosis Symptoms and Impact from the Patient and Care Partner (Caregiver)

  • July 7, 2020

    LA2 Semipostal Stamp Program

  • June 25, 2020

    UsAgainstAlzheimer’s Survey on COVID-19 and Alzheimer’s Community Summary of Findings for June 2020 Survey (Survey #4)

    UsAgainstAlzheimer’s fielded its fourth survey on the effects of COVID-19 on people

  • May 26, 2020

    UsA2 Letter Urging National Governor's Association to Encourage Governors to Require COVID-19 Testing in Long-Term Care Communities

  • May 21, 2020

    UsAgainstAlzheimer’s Survey on COVID-19 and Alzheimer’s Community Summary of Findings for May 2020 Survey (Survey #3)

  • May 5, 2020

    Establishing a National Goal for the Prevention of Alzheimer’s Disease and other Dementias in the United States

  • May 5, 2020

    Establishing a National Goal for the Prevention of Alzheimer’s Disease and other Dementias in the United States

  • May 4, 2020

    UsA2 Letter to HHS for Immediate COVID-19 Testing for All Nursing Home Staff and Resident

  • April 30, 2020

    UsAgainstAlzheimer’s Survey on COVID-19 and Alzheimer’s Community Summary of Findings for Survey 2 – April 2020

  • April 30, 2020

    A-LIST Pulse of the Community: Volume 6, April 2020

  • April 9, 2020

    COVID-19 Hill Letter

  • April 7, 2020

    UsA2 A-LIST Survey: Significant Coronavirus Impacts on Alzheimer’s Caregivers

  • March 24, 2020

    Congressional Action and Protecting Family Caregivers

  • March 16, 2020

    A-LIST Pulse of the Community: Volume 5, Spring 2020

  • February 4, 2020

    What Matters Most -- Paid Leave

  • January 27, 2020

    Brain Health Equity

  • December 30, 2019

    2019 Annual Report

    In these pages, you will find highlights of the game-changing accomplishments and tremendous

  • December 24, 2019

    2018 Annual Report

  • December 17, 2019

    Current Gaps and Key Opportunities: Equipping Providers to Reduce Dementia Risk and Support Brain Health across the Lifespan

  • November 20, 2019

    Submitted Public Comment of George Vradenburg Chairman and Co-Founder, UsAgainstAlzheimer’s

  • November 14, 2019

    UsAgainstAlzheimer's Public Comment W&M

  • November 12, 2019

    Global Alliance on Women’s Brain Health Expands in Europe with New Partnership Launched in Switzerland

  • October 23, 2019

    Priorities for Optimizing Brain Health Interventions Across the Life Course in Socially Disadvantaged Groups

  • October 22, 2019

    UsAgainstAlzheimer’s A-LIST® Brain Health Survey Key Findings

  • October 21, 2019

    A-LIST Pulse of the Community: Volume 4, Fall 2019

  • October 11, 2019

    Integrating Family Caregivers of People With Alzheimer’s Disease and Dementias into Clinical Appointments: Identifying Potential Best Practices

  • October 8, 2019

    LEAD Coalition USPSTF Comments

  • October 7, 2019

    U.S. Preventive Services Task Force (USPSTF) Comments

  • September 6, 2019

    Non-Pharma Report

  • July 16, 2019

    Latino Caregiver Preferences Pilot Study

  • July 16, 2019

    Alzheimer's Pharmacological Pipeline Report

  • July 16, 2019

    Topline Insight from the What Matters Most Qualitative Study

  • July 15, 2019

    A-LIST AD PACE What Matters Most Qualitative Study Findings

  • July 12, 2019

    Latino Caregivers

  • July 12, 2019

    Pipeline Report

  • June 27, 2019

    La Cura Para el Alzheimer: La Clave Está en los Estudios Clínicos

  • June 12, 2019

    Priorities for Optimizing Brain Health Interventions Across the Life Course in Socially Disadvantaged Groups

    This report, developed with Florida International University’s Robert Stempel College of Public

  • June 6, 2019

    Summary- CHANGE Act of 2019

    With 5.8 million Americans affected by the disease, Alzheimer's is currently our

  • June 6, 2019

    Embracing a Comprehensive Theory of Change- Senate

    In 2019, Alzheimer's and other dementias will cost the United States an estimated

  • June 6, 2019

    Embracing a Comprehensive Theory of Change- House

    No longer a concern simply for later years, proactive brain health across

  • June 6, 2019

    Embracing a comprehensive Theory of Change- Full Congress

    UsAgainstAlzheimer's (UsA2) is a disruptive advocacy and research organization that has pushed

  • June 6, 2019

    The Case for Promoting Brain Health Equity

    By 2030, nearly half of all Americans living with Alzheimer's will be

  • May 2, 2019

    Japan Roundtable Communique (Japanese)

  • May 2, 2019

    Japan Roundtable Communique

  • April 26, 2019

    Creating an Optimal System of Brain Health Care in the United States

    Preventing and effectively treating Alzheimer’s disease and other dementias are among the most important and urgent challenges of the 21st century.
  • April 26, 2019

    Creating an Optimal System of Brain Health Care in the United States-1

    Preventing and effectively treating Alzheimer’s disease and other dementias are among the

  • April 25, 2019

    Summary: Creating an Optimal System of Brain Health Care in The United States

  • April 10, 2019

    Press Release: UsAgainstAlzheime's Applauds the Bipartisan Introduction of the CHANGE Act, Critical Legislation to Promote Early Diagnosis of Alzheimer's

    The concentrating on High-Value Alzheimer's needs to Get to an End (CHANGE)

  • February 26, 2019

    Fact Sheet: Clinical Trials Awareness Toolkit

    A one-page flyer explaining the resources in the toolkit and how you

  • February 26, 2019

    Curing Alzheimer's: Clinical Trials are the Key

    Our comprehensive guide to clinical trials outlines everything you need to know

  • December 5, 2018

    Innovation in Alzheimer’s Treatment: Early Detection and Diagnosis Will Empower Global Health Care Systems

    Improving Detection and Diagnosis of Alzheimer’s Disease and Related Dementias: An Urgent

  • October 15, 2018

    The Alzheimer's Crisis

    Alzheimer's is not a normal part of aging - it is a

  • October 15, 2018

    Disparities: Shifting Demographics Place Communities of Color in the Crosshairs of Alzheimer's

    According to to researcher's, the number one risk factor for Alzheimer's is

  • October 15, 2018

    Alzheimer's and Dementia Clinical Trials

    The process of developing new drugs and treatments is long, expensive, and

  • October 15, 2018

    Faith Coalition and Clergy Network Background

    The ClergyAgainstAlzheimer's Network and the Faith United Against Alzheimer's Coalition are diverse

  • October 15, 2018

    The Eight Pillars of Brain Health

    Aging causes changes in all parts of the body, including the brain

  • September 23, 2018

    A New Frontier in Paid Leave

  • September 20, 2018

    A-LIST Pulse of the Community: Volume 2, Fall 2018

  • April 5, 2018

    Blacks & Alzheimer's Awareness Research Top Priorities

    The impact of Alzheimer’s disease on the Black community is cause for

  • April 5, 2018

    Post and Courier - Black Americans are Twice as Likely

    Even though Vernon Williams first began to notice the signs of Alzheimer's

  • April 5, 2018

    Ebony - Forget Me Not

    When Frank Self of Waxhaw, N.C., noticed that his wife, Shirley, was

  • April 5, 2018

    African Americans are more likely than whites to develop Alzheimer’s. Why?

    Gary Williams thought he had found a glimmer of hope. Six months earlier, his wife

  • April 1, 2018

    A-LIST Pulse of the Community: Volume 1, Spring 2018

  • March 8, 2018

    Creating Dementia Friendly Communities

    This paper suggests ways to foster spiritual connection and meaningful engagement for

  • February 28, 2018

    Single Endpoint for New Drug Approvals for Alzheimer’s Disease

    The Food and Drug Administration’s (FDA) approach to approving new medicines for

  • February 28, 2018

    LatinosAgainstAlzheimer's Issue Brief

    This issue brief is an educational resource that frames the impact of

  • February 28, 2018

    Attitudes, Level of Stigma, and Level of Knowledge about Alzheimer’s Disease among Hispanic Elderly Adults and Caregivers, and Alzheimer’s-Related Challenges for Caregivers.

    This executive summary from LatinosAgainstAlzheimer’s coalition member the National Hispanic Council on

  • February 28, 2018

    La crisis del Alzheimer entre los latinos: Un resumen

    A fact sheet that outlines the impact of Alzheimer's on the Latino

  • February 28, 2018

    Let's Talk about Caring for a Person with Alzheimer's Disease / Hablemos del Cuidado de una persona con Alzheimer's

    A bilingual Alzheimer’s resource guide for caregivers from our friends at the

  • February 28, 2018

    Let's Talk About Alzheimer's Disease / Hablemos de la enfermedad de Alzheimer's

    A bilingual Alzheimer’s resource guide for families from our friends at the

  • February 28, 2018

    Latinos & Alzheimer’s Disease: New Numbers behind the Crisis

    This project marks an important collaboration among the USC Edward R. Roybal

  • February 26, 2018

    WWW Campaign Fact Sheet

    Imagine a world united by women against Alzheimer’s.

  • February 26, 2018

    WA2 Fact Sheet

    Imagine a world united by women against Alzheimer’s.

  • February 8, 2018

    NIA: Caring for a Person with Alzheimer’s Disease

    This guide is for people who care for family members or others

  • February 8, 2018

    NIA: Understanding Alzheimer’s Disease

    Many older adults and their families are faced with Alzheimer’s disease. It’s

  • February 8, 2018

    NIA: Understanding Alzheimer’s Genes

    A person’s genes can affect how likely they are to develop Alzheimer’s

  • February 8, 2018

    NIA: Understanding Memory Loss

    It’s normal to forget things once in a while. However, forgetting how

  • February 8, 2018

    NIA: Participating in Alzheimer’s Research

    This is an exciting time for Alzheimer’s disease clinical research. Thanks to

  • February 8, 2018

    2017 AAN Fact Sheet

    Alzheimer’s is one of the great health crises of our time. An

  • February 8, 2018

    RA2’s Phase 3 Pipeline Analysis (March 2016)

    Success in drug development for Alzheimer’s disease has been elusive. Recent analysis

  • February 8, 2018

    RA2’s Phase 2 Pipeline Analysis (September 2016)

    A Diverse Phase 2 Pipeline of Alzheimer’s Drugs Promises New Innovations and
  • February 8, 2018

    The Costs of Alzheimer’s and Other Dementia for African Americans

    This report estimates the costs of Alzheimer's disease for African Americans and

  • February 1, 2018

    Latinos & Alzheimer’s Disease: New Numbers behind the Crisis

    Projection of the costs for U.S. Latinos living with Alzheimer’s Disease through

  • January 18, 2018

    Annual Report 2015

    In the eight years since our founding, UsAgainstAlzheimer’s has been proud and

  • January 17, 2018

    Brain Health is Women's Health

    What is the actual state of women’s knowledge about Alzheimer’s and other

  • January 16, 2018

    ResearchersAgainstAlzheimer’s Pipeline Analysis

    Alzheimer's drugs in development pipeline - Phase 2 Alzheimer's drugs and estimated

  • January 16, 2018

    Millenials and Dementia Caregiving in the United States

    This issue brief explores millennial caregiving in the United States with the

  • January 11, 2018

    Forget Me Not

    Ebony examines how families can best manage the illness that breaks so

  • October 5, 2017

    Hiding in Plain Sight

    Social and Demographic Trends That Will Exacerbate the Impact of Alzheimer’s: A Nationwide

  • October 2, 2017

    Veterans and Alzheimer’s: Meeting the Crisis Head On

    A newly released analysis about the disproportionate impact of Alzheimer’s on veterans

  • October 1, 2016

    Latinos and Alzheimer’s: New Numbers Behind the Crisis

    A first-of-its kind report on the economic impact of Alzheimer’s on Latino

  • January 1, 2014

    The Costs of Alzheimer’s and Other Dementias for African Americans

    The economic burden of Alzheimer’s and other dementias for African Americans was

  • January 1, 2013

    National Plan to Address Alzheimer’s Disease

    Looking for information about Alzheimer’s disease? Helpful links: Alzheimer's Disease Basics Video