Alzheimer's disease is no longer just a memory problem — it's a biological, cultural, and ethical challenge reshaping how we think about aging, identity, and medicine. In this episode of Brainstorm by UsAgainstAlzheimers, host Meryl Comer sits down with Dr. Jason Karlawish, professor of medicine, medical ethics, health policy, and neurology at the University of Pennsylvania. 

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UsAgainstAlzheimer’s President and COO, Russ Paulsen, joined Punchbowl News founder Anna Palmer for a powerful conversation on the importance of medical research funding in the fight to cure Alzheimer’s and other diseases. Russ also serves as Executive Director of United for Cures, a collaborative network of patient advocacy organizations working together to protect and strengthen federal research funding.

In honor of Black History Month, this episode of BrainStorm by UsAgainstAlzheimer’s explores the critical intersection of Alzheimer's disease and health equity in African-American communities. Host Meryl Comer talks with Daphne Delgado, Vice President for Health Equity at UsAgainstAlzheimer's, and Dr. Charlene Whitaker-Brown, a clinical nursing professor and 2022 Brain Health Equity Nurse Fellowship graduate. 

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Hear what 2024 likely voters have to say about Alzheimer's, Medicare, and the role they want elected leaders to play in combatting this disease.

“There was such stigma around the disease…I had no guilt; I did the best I could. I knew they were safe; I knew they were loved…we do it with love."

“What I’d love to say to all the caregivers out there, trust your gut, you know your person better than anyone else.”
 

“Give grace to yourself and give grace to the person suffering through the disease, because for both people it is extremely hard.”

“As a caregiver, it is okay to ask for help, it’s okay to have a bad day and to make a mistake…you’re allowed to forgive yourself.”

From people living with the disease to those who care for them, the story of Alzheimer’s is one that touches nearly all of us in some way. Hear the very personal journeys of people living through the challenges of Alzheimer’s and gain a deeper understanding of their experiences.

Co-founder of UsAgainstAlzheimer's Meryl Comer speaks on sharing our passion and turning your insights into data to support and improve the quality of life for all families on the Alzheimer’s journey.

Brian Van Buren shares his experience living with Alzheimer’s, the disease’s impact on Black people, and why he has become a vocal advocate. 

Martha Villanigro-Santiago is a caregiver to her mother and describes the challenges caregivers face every day. Listen as she shares her experience and her concerns about the disproportionate risk of Alzheimer’s facing Latinos. 

Martha Villanigro-Santiago is a caregiver to her mother and describes the challenges caregivers face every day. Listen as she shares her experience and her concerns about the disproportionate risk of Alzheimer’s facing Latinos. 

Kevin and Kim Bonham share their story about Kevin’s diagnosis, promising new treatments, and hope for the future. Watch their story now.

UsAgainstAlzheimer's was formed in 2010 to accelerate action to end this disease. This video looks at what all of "Us" have accomplished in the first decade - and the need to keep up the momentum.

Chronical of Jay's journey with Alzheimer's Part 10

Chronical of Jay's journey with Alzheimer's Part 9

Chronical of Jay's journey with Alzheimer's Part 8

Chronical of Jay's journey with Alzheimer's Part 7

Chronical of Jay's journey with Alzheimer's Part 6

Chronical of Jay's journey with Alzheimer's Part 5

Chronical of Jay's journey with Alzheimer's Part 4

Chronical of Jay's journey with Alzheimer's Part 3

Chronical of Jay's journey with Alzheimer's part 2

Chronical of Jay's journey - part 1

Surviving Grace is UsAgainstAlzheimer’s Co-Founder Trish Vradenburg’s quasi-autobiographical play, which was produced at The Kennedy Center in Washington, D.C. and Off Broadway at the Union Square Theater in New York City. The touching and funny story tells the story of Trish’s mom Bea Lerner and her battle with Alzheimer’s.

CEOi Executive Director Drew Holzapfel featured on Roche’s Alzheimer’s Disease Taxi discussing the biggest challenges to innovative treatments reaching patients and how cross-sector collaboration can address the most urgent, unmet needs in Alzheimer’s disease.

On September 15, 2022, UsAgainstAlzheimer’s Center for Brain Health Equity held a virtual Congressional briefing on the state of Alzheimer’s disease in the U.S.

Latinos, Black Americans, and women are more likely to develop Alzheimer’s and are more likely to experience barriers to access. Chairman and Co-Founder, George Vradenburg meets with the Hill to discuss the “unconscionable” effect Medicare’s proposal to deny coverage for a critical class of drugs could have on these communities. As Pres. Biden follows through on his promise to lower costs and increase access to life saving drugs and treatments, CMS must think critically about the ways its decision will set us back and further the burden to access on minority communities. Watch to learn more.

Please join an UsAgainstAlzheimer's Brain Health Partnership meeting on January 27 to discuss the recent and tremendous victory realized by the Alzheimer's community--making the prevention of Alzheimer's and related dementia a national priority.

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As welcoming, compassionate environments, faith communities play a powerful role in offering engagement, support and spiritual respite for people living with dementia and their families. Join us for a webinar on creating dementia friendly African American congregations presented by the Alter Program, Faith United Against Alzheimer’s, and Dementia Friendly America. Our expert speakers will share strategies and practical approaches for fostering spiritual connection to support and uplift people living with dementia and their families. Bring a beverage, snack or dinner and join us for this lively conversation

A quick highlight of the 2020 UsAgainstAlzheimer's National Alzheimer's Summit.

The key to stopping Alzheimer's

“My father passed away in January of 2015, just one day before I was sworn in as a United States senator. My mother, Shelley, passed away just a few months beforehand in September of 2014. There is not a book that has been written yet that can tell you what to do when a loved one is diagnosed, because each case is different and there’s no magic formula. But I feel strongly that we can do much more to help our caregivers, to ease the pain of those who suffer from this disease, and, most importantly, to find a cure. …"

“It gives me a sense of purpose and power over the disease to know that I’m participating in what could lead to the cure that’s going to really help so many people.”

“People are involved because they’re on a crusade to try to help cure this thing. She said what she found is a lot of good hope there.”

“I don’t want [my daughter] to even have to think about this. I knew that I needed to go into medical trials and help find a cure. I saw myself as part of that team”

It's in our hands to end Alzheimer's

Clinical trials are key to accelerating an Alzheimer’s cure. Watch our whiteboard video to learn more about clinical trials, and why you should “do something great” and sign up for one.

How UsAgainstAlzheimer's is Accelerating a Cure.

AfricanAmericansAgainstAlzheimer’s, an UsAgainstAlzheimer’s network, presents the national award-winning play Forget Me Not at locations across the country.

The Latino older adult population is expected to triple by 2050, making up 18 percent of America’s older adults. The rise in that population could increase the number of Latino older adults suffering from Alzheimer’s by 600 percent.

Jason Resendez, Director of LatinosAgainstAlzheimer’s discusses efforts to raise awareness.

Resendez notes, “The leading risk factor for Alzheimer’s is advanced age. As Latinos live longer—in fact life expectancy for Latinos is expected increase to 87 years old on average by 2050—they’re at the highest risk bracket for Alzheimer’s disease.”