Overview

From Personal Stories to Powerful Action: Making a Difference in Alzheimer's

UsAgainstAlzheimer's is renowned for its thought leadership and rich history of bringing together patients, caregivers, researchers, policymakers, and changemakers to both confront the toughest challenges and celebrate groundbreaking advancements in Alzheimer's prevention, detection, and treatment. Our annual summit exemplifies that commitment. This year's theme, “From Personal Stories to Powerful Action: Making a Difference in Alzheimer's,” will elevate the voices of patients and caregivers while driving impactful change through collaboration with government leaders, scientists, the private sector, and partner organizations. In a time of uncertainty, one thing remains certain: UsAgainstAlzheimer's continues to advocate for advancing science and improving diagnosis, while giving a voice to patients and caregivers. This year's summit will shine a light on the human experience of Alzheimer's and explore the opportunities ahead. With multiple calls to action, the discussions will offer attendees meaningful ways to speak up and make a difference for those affected by the disease.

DAY 1 – Wednesday, September 10, 2025

1:00 - 1:25pm ET - Summit Opening Kick-Off 

George Vradenburg, Chairman and Co-Founder, UsAgainstAlzheimer's

1:30 - 2:20pm ET - Patient Pathways: Cutting Through the Noise

What does “good” care really mean for someone with Alzheimer's? How can patients and their loved ones navigate this complex journey with clarity and efficacy? Patients and providers will discuss a path forward, specifically highlighting how individuals get diagnosed earlier, move into treatment or clinical trials if appropriate and desired, and have as much time as possible for them and their care partners to plan appropriately. This high-level road map will provide a pathway for both patients and their care partners. Key question: What are the challenges faced after diagnosis and how do people benefit from a roadmap?

2:30 - 3:20pm ET - Better Information Quicker: The Growth of Digital Resources and Cognitive Assessments

Easy access to high-quality resources and cognitive assessments would be a gamechanger for anyone concerned about their or a loved one's cognitive health. Remote digital cognitive assessments (remote DCAs) have the potential to do just that, with many advantages over traditional pen-and-paper versions, including reliability, access, cost-effectiveness, and the capability of tracking over multiple assessments. Similarly, the BrainGuide platform empowers people with free and accessible knowledge and resources. This panel will discuss what the use of digital resources and cognitive assessments could look like in the home setting. Key Question: How can new innovations make Alzheimer's resources and assessments more accessible for everyone?

3:30 - 4:20pm ET - Anything is Possible: The Race to Be the Last Alzheimer's Patient

This inspiring session will feature remarkable individuals who have refused to let an Alzheimer's diagnosis define their limits—from athletic pursuits to scientific studies and global advocacy. Seeing themselves as living with—not dying with—a diagnosis, they bust the stigma and remain proactive by taking steps to be brain healthy as long as they can. Each speaker will share their personal journey and leave us with a powerful call to action for policymakers, clinicians, and the public.  Key Question: Each of you has chosen not just to live with Alzheimer's or the fear of it—but to lead with it. What was the moment or realization that shifted your mindset from fear or limitation to purpose and action?

4:20pm ET - Day One Closing Remarks

Russ Paulsen, Chief Operating Officer, UsAgainstAlzheimer's

DAY 2 – Thursday, September 11, 2025

1:00 - 1:45pm ET - Keynote Conversation

Emma Heming Willis, wife of Bruce Willis, shares her deeply personal story of navigating a dementia diagnosis to caring for her husband.

2:00 - 2:45pm ET - Going Viral for Good: Amplifying Caregiving

When caregiving begins, advocacy often follows. Hear from caregivers, some who are young adults and teens, on how storytelling, social media, and shared experiences are driving real change and reimagining support systems for families everywhere. Key Question: How are young caregivers using storytelling and social medial to advocate for change, and how are their voices helping to build stronger, more supportive systems for families? 

3:00 - 3:45pm ET - Advocating with a Purpose: Why Your Story Matters

When personal experiences meet advocacy, stories become catalysts for change. Hear from advocates and experts on how sharing your story – whether as a family member, caregiver, patient, or supporter – can influence policy, empower communities, and advance the fight against Alzheimer's at every level. Discover practical ways to craft and use your narrative to inspire action and affect real progress. Key Question: How can you harness your personal story to advance Alzheimer's advocacy efforts and motivate others to join the cause?

3:45 - 4:15 ET - Fireside Chat with Members of Congress

4:15pm ET -  Summit Closing Remarks 

Russ Paulsen, Chief Operating Officer, UsAgainstAlzheimer's

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