Here are some recent A-LIST highlights:

Mayo Clinic, with A-LIST's assistance, conducted a study examining different types of lucid episodes within Alzheimer's Disease and related dementias. As a result, the Mayo team identified four different types of lucid events. Details were published in a research article, "Developing and describing a typology of lucid episodes among people with Alzheimer's disease and related dementias"

Published in Gerontology and Geriatric Medicine, via Sage Publishing: “Caring for Dementia Caregivers: Understanding Caregiver Stress During the COVID-19 Pandemic”

Cited in public comments or presentations to the FDA, in support of Aduhelm and Rexulti treatment availability

Utilized by the Brain Health Academy to educate healthcare professionals on dementia risk factors

Sub-awardee of a three-year grant from the National Institute on Aging working with Mayo Clinic for studying lucidity in dementia

Partnering on a survey of the value of treatments in a consortium initiated by Tufts University.

Projects including AD-PACE and Biogen

How the A-LIST Works:

Online surveys: Twice a month you will receive an email from A-LIST Founder Meryl Comer inviting you to answer a short survey.

Surveys ask about the issues we care about: Past survey topics include challenges for caregivers; dementia symptoms, such as agitation; managing the COVID-19 pandemic; and traveling with dementia.

We use anonymous survey results to make life better for our community: We make sure policy makers, researchers, health care providers, drug developers, insurers, and others who serve our community understand and consider our insights and preferences.

Get started! CLICK HERE to add your name, then check “I Agree” to sign our consent form that explains the A-LIST study. Then take our first online survey: the Pulse of the Community.

"There is strength in the number of caregivers willing to devote their daily lives to improving the lives of their loved ones suffering from Alzheimer’s. The A-LIST nurtures that strength by bringing us together to facilitate a path to a cure, and centering on the needs of both culturally diverse patients and caregivers." - A-LIST Caregiver

BrainStorm - A LIST PROMO from Debra Tann

2023 Bright Focus Foundation Community Impact Awardee, author of The Race of Dementia, Dr. Debra Tann, tells the Emmy Award-WinningNYTimes Bestselling, BrainStorm podcast host, Meryl Comer, why she loves UsAgainstAlzheimer's A-LIST.

Our podcast episode "Debra Tann, Ed D - Author of The Race of Dementia"

What We’ve Learned: The Impact of COVID-19

We are so pleased to share our A-LIST article,  “Caring for Dementia Caregivers: Understanding Caregiver Stress During the COVID-19 Pandemic,” published in Gerontology and Geriatric Medicine, via Sage Publishing. You can also read it HERE.

This data was gathered in eight longitudinal surveys conducted over the course of the COVID-19 pandemic.   

Thank you for raising your voice, sharing your experiences and contributing to the growing wealth of knowledge about the Alzheimer’s experience.

The Latest A-LIST Publications

Alzheimer's & Dementia - The Journal of the Alzheimer's Association: Developing and describing a typology of lucid episodes among people with Alzheimer's disease and related dementias

A-LIST Pulse of the Community, Volume 15, July 2023: Connecting the Alzheimer's Community as Partners in Research

A-LIST Pulse of the Community, Volume 14, December 2022: Lucidity in Dementia

Find the Full List of A-LIST Publications Here

Research Partners

For questions about A-LIST membership or partnership, please contact Terry Frangiosa [email protected].
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