A-LIST® Publications

Read about the latest research from UsAgainstAlzheimer's A-LIST.

A-LIST Pulse of the Community

  • December 15, 2022

    A-LIST Pulse of the Community Vol 14, December 2022

  • November 17, 2022

    A-LIST Pulse of the Community – November 2022

  • A-LIST Pulse of the Community Vol 12, August 2022

    The mission of the A-LIST is to leverage data to make life...

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  • June 23, 2022

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    Caregiver appraisals of lucid episodes in people with late-stage Alzheimer's disease or related dementias

    Alzheimer’s & Dementia: Diagnosis, Assessment & Disease Monitoring, June 2022

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  • UsAgainstAlzheimer's

    A-LIST Pulse of the Community Vol 11, May 2022

    The mission of the A-LIST is to use survey results to make...
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  • December 17, 2021

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    Early Descriptions of Family Caregivers' Experiences With Unexpected Lucidity

    Innovations in Aging, December 2021

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  • November 4, 2021

    A-LIST Pulse of the Community - November 2021

  • November 3, 2021

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    New Research Shows Need for Greater Focus on Brain Health

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  • November 1, 2021

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    Episodes of lucidity (paradoxical lucidity)

    A survey of family caregivers of persons with dementia, International Psychogeriatrics

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  • August 23, 2021

    Summary of Findings: UsAgainstAlzheimer’s Survey on Early Diagnosis and Attitudes Toward Use of a Disease-Modifying Alzheimer’s Therapy

  • August 9, 2021

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    Symptoms and Treatment Needs of People with Dementia-Related Psychosis: A Mixed-Methods Study of the Patient Experience

    This study describes the person-centered experience and impact of symptoms and the...

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  • June 23, 2021

    A-LIST Pulse of the Community: Volume 8, June 2021

  • June 14, 2021

    Changing Face of Alzheimer's: A Survey on Burden for Caregivers from Communities of Color

  • June 14, 2021

    Changing Face of Alzheimer's: A Survey on Relationships of Caregivers of Color with Health Care Providers

  • Virginia Biggar

    COVID-19 and Dementia: What People Have Learned about Themselves

    The Alzheimer’s community has experienced enormous hardship and heartache since the COVID-19...

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  • November 3, 2020

    Caregiver Perspectives on the Burden and Impact of Agitation in Caring for Loved Ones with Dementia/Alzheimer's Disease

  • Virginia Biggar

    COVID-19 and Dementia: Lessons for the Next Pandemic

    People with dementia and care partners are among those hardest hit by...

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  • Virginia Biggar

    COVID-19 and Dementia: Imagining the Future with a Vaccine

    With the national conversation focused on when a vaccine for COVID-19 might...

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  • A-LIST Pulse of the Community (Archive 2018-2020)

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  • UsAgainstAlzheimer's

    What Will Happen to My Loved One if I Become Sick with COVID-19? Making a Plan.

    By Terry Frangiosa and Meryl Comer

    The personal and collective fear of...

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  • July 30, 2020

    Research Survey Series Shows Effects of COVID-19 Shutdowns on Alzheimer’s Community, with Especially High Stress on Caregivers

    Advances in Geriatric Medicine and Research, July 2020

  • July 27, 2020

    Treatment Patterns and Needs for Dementia-Related Psychosis Described by Patients and Care Partners (Caregivers)

    Treatment Patterns and Needs for Dementia-Related Psychosis Described by Patients and Care

  • July 27, 2020

    Dementia-Related Psychosis Symptoms and Impact from the Patient and Care Partner (Caregiver) Perspective

    Dementia-Related Psychosis Symptoms and Impact from the Patient and Care Partner (Caregiver)

  • Roger Lowe

    COVID-19 Impacts Increasing on People Living with Alzheimer’s in Nursing Homes and on their Families

    The ongoing coronavirus pandemic and restrictions in nursing homes and other long-term...
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  • Roger Lowe

    COVID-19 Pandemic’s Disproportionate and Dangerous Effects on the Alzheimer’s Community

    The COVID-19 pandemic and closures have had disproportionate and dangerous effects throughout...
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  • October 11, 2019

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    Integrating Family Caregivers of People With Alzheimer’s Disease and Dementias into Clinical Appointments: Identifying Potential Best Practices

    Family caregiver engagement in clinical encounters can promote relationship-centered care and optimize...

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