A-LIST® Publications Read about the latest research from UsAgainstAlzheimer's A-LIST. A-LIST Pulse of the Community December 15, 2022 A-LIST Pulse of the Community Vol 14, December 2022 Read More (394.73 KB) November 17, 2022 A-LIST Pulse of the Community – November 2022 Read More (466.17 KB) July 29, 2022 A-LIST Pulse of the Community Vol 12, August 2022 The mission of the A-LIST is to leverage data to make life... Read more June 23, 2022 Read Full Article Caregiver appraisals of lucid episodes in people with late-stage Alzheimer's disease or related dementias Alzheimer’s & Dementia: Diagnosis, Assessment & Disease Monitoring, June 2022 Read more May 9, 2022 UsAgainstAlzheimer's A-LIST Pulse of the Community Vol 11, May 2022 The mission of the A-LIST is to use survey results to make... Read more December 17, 2021 Read Full Article Early Descriptions of Family Caregivers' Experiences With Unexpected Lucidity Innovations in Aging, December 2021 Read more November 4, 2021 A-LIST Pulse of the Community - November 2021 Read More (1.67 MB) November 3, 2021 Read Full Article New Research Shows Need for Greater Focus on Brain Health Read more November 1, 2021 Read Full Article Episodes of lucidity (paradoxical lucidity) A survey of family caregivers of persons with dementia, International Psychogeriatrics Read more August 23, 2021 Summary of Findings: UsAgainstAlzheimer’s Survey on Early Diagnosis and Attitudes Toward Use of a Disease-Modifying Alzheimer’s Therapy Read More (197.03 KB) August 9, 2021 Read Full Article Symptoms and Treatment Needs of People with Dementia-Related Psychosis: A Mixed-Methods Study of the Patient Experience This study describes the person-centered experience and impact of symptoms and the... Read more June 23, 2021 A-LIST Pulse of the Community: Volume 8, June 2021 Read More (770.19 KB) June 14, 2021 Changing Face of Alzheimer's: A Survey on Burden for Caregivers from Communities of Color Read More (148.81 KB) June 14, 2021 Changing Face of Alzheimer's: A Survey on Relationships of Caregivers of Color with Health Care Providers Read More (214.75 KB) December 2, 2020 Virginia Biggar COVID-19 and Dementia: What People Have Learned about Themselves The Alzheimer’s community has experienced enormous hardship and heartache since the COVID-19... Read more November 3, 2020 Caregiver Perspectives on the Burden and Impact of Agitation in Caring for Loved Ones with Dementia/Alzheimer's Disease Read More (261.61 KB) October 19, 2020 Virginia Biggar COVID-19 and Dementia: Lessons for the Next Pandemic People with dementia and care partners are among those hardest hit by... Read more October 14, 2020 Virginia Biggar COVID-19 and Dementia: Imagining the Future with a Vaccine With the national conversation focused on when a vaccine for COVID-19 might... Read more December 31, 2020 A-LIST Pulse of the Community (Archive 2018-2020) A-LIST Pulse of the Community: Volume 1, Spring 2018 A-LIST Pulse of... Read more August 24, 2020 UsAgainstAlzheimer's What Will Happen to My Loved One if I Become Sick with COVID-19? Making a Plan. By Terry Frangiosa and Meryl Comer The personal and collective fear of... Read more July 30, 2020 Research Survey Series Shows Effects of COVID-19 Shutdowns on Alzheimer’s Community, with Especially High Stress on Caregivers Advances in Geriatric Medicine and Research, July 2020 Read More (280.22 KB) July 27, 2020 Treatment Patterns and Needs for Dementia-Related Psychosis Described by Patients and Care Partners (Caregivers) Treatment Patterns and Needs for Dementia-Related Psychosis Described by Patients and Care Read More (434.07 KB) July 27, 2020 Dementia-Related Psychosis Symptoms and Impact from the Patient and Care Partner (Caregiver) Perspective Dementia-Related Psychosis Symptoms and Impact from the Patient and Care Partner (Caregiver) Read More (386.67 KB) July 1, 2020 Roger Lowe COVID-19 Impacts Increasing on People Living with Alzheimer’s in Nursing Homes and on their Families The ongoing coronavirus pandemic and restrictions in nursing homes and other long-term... Read more May 29, 2020 Roger Lowe COVID-19 Pandemic’s Disproportionate and Dangerous Effects on the Alzheimer’s Community The COVID-19 pandemic and closures have had disproportionate and dangerous effects throughout... Read more October 11, 2019 Read Full Article Integrating Family Caregivers of People With Alzheimer’s Disease and Dementias into Clinical Appointments: Identifying Potential Best Practices Family caregiver engagement in clinical encounters can promote relationship-centered care and optimize... Read more
