Community leaders driven by passion and purpose to stop Alzheimer's.

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About Us

We are people living with Alzheimer's or other dementias, and care partners from across the country who are on the front lines of fighting this disease. We work tirelessly in our communities to create new approaches to finding a cure, supporting those living with Alzheimer's and their families, and demanding action to stop Alzheimer's.


We advocate for cutting-edge solutions to improve Alzheimer’s care and accelerate research. We draw on our experiences as individuals from diverse backgrounds living with Alzheimer’s and other dementias, as care partners, and as family members to demand and implement innovative initiatives for care and a cure in our communities, nationwide and online.

We write, speak, advise, organize, and advocate to ensure that the voices of those living with dementia and care partners are central to key decisions made by policy makers, researchers, and industry. We tell our stories to bring this devastating disease out of the shadows and improve the lives of those living with Alzheimer’s and other dementias and their families. We are driven by the struggles of our own families and the millions of Americans touched by this disease, and by the optimism that it can and will be defeated.


Member Background Location
Jane Bandler LCPC (retired) Caregiver 2008-2017 Bethesda, MD
Carol Bradley Bursack Author, columnist, and writer, “Minding Our Elders”, Moderator, UsA2 Facebook Caregiver Support Group Fargo, ND
James Creasey

Founder and CEO,
Jiminy Wicket Foundation

Denver, CO

Michael Ellenbogen

Living proudly with Dementia

Jamison, PA

Lynda Everman

Founder, WomenAgainstAlzheimer’s
Founder, ClergyAgainstAlzheimer’s
Alzheimer’s Semipostal Advocate

Birmingham, AL

Terry Frangiosa

Principal Investigator,
UsAgainstAlzheimer’s A-LIST

Harleysville, PA

Karen Garner

Author, "Missing Jim"
Alzheimer’s Caregiver Consultant

Virginia Beach, VA

Lisa Hirsch

Author, My Mom My Hero
Founder, Alzheimer’s: My Mom My Hero website

New York, NY
Lori LaBey

30-Year Care Partner
Founder, Alzheimer’s Speaks

Maplewood, MN

Marie Marley, PhD

Co-Author, Finding Joy in Alzheimer's: New Hope for Caregivers

Kansas City, KS
Ann Napoletan

Co-Author, Founder, Marilyn's Legacy, Founder, UsA2 Facebook Support Group

Columbus, OH
Daniel C. Potts, MD, FAAN

Founder, Cognitive Dynamics Foundation

Tuscaloosa, AL

Ellen W. Potts, MBA

Founder, Dementia Dynamics, LLC

Tuscaloosa, AL

Jessica Price-Parrott

Moderator, UsA2 Facebook Caregiver Support Group

Lincoln, NE

Hailey Richman

Associate Director, Puzzles to Remember

New York, NY

Susan Kiser Scarff

Author, Dementia: The Journey Ahead, A Practical Guide for In-Home Caregivers
Founder, Dementia: The Journey Ahead Facebook Support Group  

Phoenix, AZ

Kathy Siggins

Alzheimer’s Semipostal Advocate & Former Caregiver

Mount Airy, MD

Allan S. Vann

Author, “Reflections of an Alzheimer’s Spouse”

Commack, NY

Loretta Woodward Veney

Being My Mom's Mom & Refreshment for the Caregiver's Spirit
Moderator, UsA2 Facebook Caregiver Support Group

Clinton, MD

"A cure for Alzheimer’s: a fantasy, a wish, an impossible dream—the same words that were said to Galileo, Edison, Curie, Salk, and whoever dreamed up the internet. Yesterday’s dream is today’s reality."

Trish Vradenburg

Co-Founder, UsAgainstAlzheimer’s
UsA2’s series “Giving Voice to What Matters Most” features the stories of people who are living with dementia or at high risk for the disease. Tracey Lind, Daisy Duarte and Greg O’Brien met by Zoom to talk about issues that are important to them.

Giving Voice to What Matters Most

Caregiver Support

Our private Facebook support group is a welcoming, warm, safe place for dementia caregivers to ask questions, share stories and advice, and connect with caregivers all over the country who are facing similar challenges. 


  • Learn

    National Alzheimer's Summit: Diversifying the Race for a Cure and Care

  • Share Your Story 

    Bring Alzheimer's out of the shadows.

  • Join the A-LIST 

    Make your opinions count for Alzheimer's research.

Latest Updates

  • Virginia Biggar

    Giving Voice to What Matters Most: Our Stories

    UsAgainstAlzheimer’s is launching “Giving Voice to What Matters Most” – a series...

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  • Conor Michael O’Brien

    Father’s Day Memories: Faith, Hope and Humor

    My time with my father, and who he was, is now fleeting...
    Read more
  • Greg O'Brien

    Father’s Day: A Refection through the Prism of Alzheimer’s

    Father’s Day has me reflecting on all this, and striving to leave...
    Read more
  • May 18, 2020

    May 18, 2020

    A May 14, 2020 KU Medical Center article highlighted the University of...

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  • Roger Lowe

    Documentary on Gene Wilder’s Battle with Alzheimer’s Moving Forward

    Now a new Wilder movie is on the horizon, one with a...
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  • Karen Segal

    Looking ahead on Mother’s Day after a long goodbye

    Mother’s Day hasn’t truly been the same for me since 2002. That...
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