Leaders in our communities, nationally and online, who are driven by passion and purpose to stop Alzheimer's. 

Join us in the fight to stop Alzheimer’s.

About Us

We are patients living with Alzheimer's or other dementias, caregivers, family members, and friends from across the country who are on the front lines of fighting this disease. We are working in our communities, nationally and online, to create new approaches to finding a cure, supporting those living with Alzheimer's and their families, and demanding action to stop Alzheimer's. 

Strategy

We advocate for cutting-edge solutions to improve Alzheimer’s care and accelerate research. We draw on our experiences as individuals from diverse backgrounds living with Alzheimer’s and other dementias, as care partners, and as family members to demand and implement innovative initiatives for care and a cure in our communities, nationwide and online.

We write, speak, advise, organize, and advocate to ensure that the voices of those living with dementia and care partners are central to key decisions made by policy makers, researchers, and industry. We tell our stories to bring this devastating disease out of the shadows and improve the lives of those living with Alzheimer’s and other dementias and their families. We are driven by the struggles of our own families and the millions of Americans touched by this disease, and by the optimism that it can and will be defeated.

Leaders

Member Background Location
Jane Bandler LCPC (retired) Caregiver 2008-2017 Bethesda, MD
Carol Bradley Bursack Author, columnist, and writer, “Minding Our Elders” Fargo, ND
James Creasey

Founder and CEO,
Jiminy Wicket Foundation

Denver, CO

Michael Ellenbogen

Living proudly with Dementia

Jamison, PA

Lynda Everman

Founder, WomenAgainstAlzheimer’s
Founder, ClergyAgainstAlzheimer’s
Alzheimer’s Semipostal Advocate

Birmingham, AL

Terry Frangiosa

Caregiver and Advocate
Director, The A-LIST

Harleysville, PA

Karen Garner

Author, "Missing Jim"
Alzheimer’s Caregiver Consultant

Virginia Beach, VA

Lisa Hirsch

Author, My Mom My Hero
Founder, Alzheimer’s: My Mom My Hero website

New York, NY
Lori LaBey

30-Year Care Partner
Founder, Alzheimer’s Speaks

Maplewood, MN

Marie Marley, PhD

Co-Author, Finding Joy in Alzheimer's: New Hope for Caregivers

Kansas City, KS
Ann Napoletan

Co-Author, Founder, Marilyn's Legacy, Founder, UsA2 Facebook Support Group

Columbus, OH
Daniel C. Potts, MD, FAAN

Founder, Cognitive Dynamics Foundation

Tuscaloosa, AL

Ellen W. Potts, MBA

Founder, Dementia Dynamics, LLC

Tuscaloosa, AL

Jessica Price-Parrott

Moderator, UsA2 Facebook Support Group

Lincoln, NE

Hailey Richman

Founder, KidCaregivers.com
Associate Director, Puzzles to Remember

New York, NY

Susan Kiser Scarff

Author, Dementia: The Journey Ahead, A Practical Guide for In-Home Caregivers
Founder, Dementia: The Journey Ahead Facebook Support Group  

Phoenix, AZ

Kathy Siggins

Alzheimer’s Semipostal Advocate & Former Caregiver

Mount Airy, MD

Allan S. Vann

Author, “Reflections of an Alzheimer’s Spouse”

Commack, NY

Loretta Woodward Veney

Being My Mom's Mom & Refreshment for the Caregiver's Spirit
Moderator, UsA2 Facebook Support Group

Clinton, MD

  • 5.7 million

    people in the United States are living with Alzheimer's.

  • 16 million

    people in the United States are projected to have Alzheimer's by 2050.

  • 15 million

    family members serve as unpaid caregivers for a relative with Alzheimer's or another dementia in the United States.

"A cure for Alzheimer’s: a fantasy, a wish, an impossible dream—the same words that were said to Galileo, Edison, Curie, Salk, and whoever dreamed up the internet. Yesterday’s dream is today’s reality."

Trish Vradenburg

Co-Founder, UsAgainstAlzheimer’s

Voices of Alzheimer's

The On Pluto Podcast

Journalist Greg O’Brien was diagnosed with early onset Alzheimer’s when he was 59 years old. The On Pluto Podcast chronicles Greg’s journey with this disease. It is a production of UsAgainstAlzheimer’s and the A-LIST.

We must increase public- and private-sector investment in research

to achieve the audacious but attainable goal of stopping Alzheimer's disease.

Take action now.

Caregiver Support

Our private Facebook support group is a welcoming, warm, safe place for dementia caregivers to ask questions, share stories and advice, and connect with caregivers all over the country who are facing similar challenges. 

Resources

  • Learn

    National Alzheimer's Summit: Diversifying the Race for a Cure and Care

  • Share Your Story 

    Bring Alzheimer's out of the shadows.

  • Join the A-LIST 

    Make your opinions count for Alzheimer's research.

Latest Updates

  • Marie Marley

    Pets and Engaging Those Living with Alzheimer's

    There is substantial research supporting the notion that activities involving pets (and...

    Read more
  • Marie Marley

    Using Art to Bring Joy to Those Living with Alzheimer’s

    Finding_JoyLester Potts, the father of neurologist, Daniel C. Potts, MD, FAAN, had...

    Read more
  • Michael Ellenbogen

    Dementia Patients Should Inform Tech Development

    My daughter recently bought me a Google Home Mini. As someone who...

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  • Marie Marley

    Using Music to Engage and Comfort People Living with Alzheimer’s Disease

    Music has the power to reach people with Alzheimer’s disease on a...

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  • Virginia Biggar

    Conversations with Greg O'Brien

    “Memory is the treasury and guardian of all things”—Marcus Tullius Cicero, 63 BC...

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  • Lynda Everman

    The Alzheimer's Stamp

    The release of the Alzheimer's stamp represents eighteen years of continuous effort on the...

    Read more