A-LIST Pulse of the Community - December 2021

Download Report
December 09, 2021 - Greg O'Brien

Congress Should Act: Paid Leave for Caregivers Essential in the Battle with Dementia

“I got plenty of money; it’s just tied up in debt,” as the saying goes. Humor often has a way of getting to the point. The debt and associated burdens are mounting at staggering levels for caregivers of those afflicted with Alzheimer’s, other forms of dementia, and other serious illnesses. There are an estimated 53 million family caregivers in the United States—16 million providing dementia care who too often are caught in an unsustainable conflict between caregiving and work responsibilities. I know this path well—first as a family caregiver, and now as one diagnosed with Alzheimer’s and being helped by
5

Interview with Patti Davis

Patti Davis, daughter of President Ronald Reagan and author of Floating in the Deep End shares her experience as an Alzheimer’s caregiver, sheds light on her family’s experience with AD, and offers insights for dementia caregivers. 
LISTEN NOW
4

Public Health Leadership in Alzheimer’s: Equity Matters

Three former U.S. Surgeons General - Dr. Richard Carmona, Dr. Jocelyn Elders, and Dr. David Satcher have been trailblazers in standing up against systemic racism and health care inequity throughout their careers.
LISTEN NOW
3

Are We Ready to End Alzheimer's? Hell no.

Are we ready to end Alzheimer's? Hell no. That is the view of George Vradenburg, chairman and co-founder of UsAgainstAlzheimer’s, as he talks about the

LISTEN NOW
2

American Dementia: Brain Health in an Unhealthy Society - Interview with authors Drs. Whitehouse and George

Co-Authors Daniel R. George, PhD, MSc, medical anthropologist and Associate Professor at Penn State College of Medicine and Peter J. Whitehouse, MD, PhD, Professor of Neurology at Case Western Reserve University and professor of medicine at University of Toronto discuss their book, "American Dementia: Brain Health in an Unhealthy Society".
LISTEN NOW
1

Interview with Dr. Rudy Tanzi

BrainStorm by UsAgainstAlzheimer's launched on World Alzheimer's Day with guest Dr. Rudy Tanzi, a recognized rock star in AD research who discovered the three genes associated with early-onset Alzheimer’s and is a staunch proponent of prevention.
LISTEN NOW
0

BrainStorm by UsAgainstAlzheimer's Trailer

BrainStorm, a free podcast series by UsAgainstAlzheimer’s, features conversations with doctors, researchers, authors and luminaries, people living with dementia and their caregivers.
LISTEN NOW
October 28, 2021 - Greg O'Brien

A Letter to Doctors: Talk with Your Patients about Brain Health and Alzheimer’s Disease

Editor’s note: This blog post is an open letter to the medical community from UsAgainstAlzheimer’s board member Greg O’Brien, who suffers from and lives daily with Alzheimer’s, about how doctors can improve the diagnosis of Alzheimer’s and other dementias; care in the early stages of the disease; and the critical importance of a candid dialogue about brain health. Dear Primary Care and Family Doctors, As T.S. Eliot has said: “We shall not cease from exploration, and the end of all our exploring will be to arrive where we started, and know the place for the first time.” Alzheimer’s has been
Thumbnail
October 27, 2021 - UsAgainstAlzheimer's

Stephanie Monroe's Congressional Testimony on the Importance of Paid Leave

Stephanie Monroe, Executive Director of AfricanAmericansAgainst Alzheimer's, a network of UsAgainstAlzheimer's, testified before the Subcommittee on Health of the Committee on Energy and Commerce, "Caring for America: Legislation to Support Patients, Caregivers, and Providers." Ms. Monroe spoke about her experience as a family caregiver to her father who lives with Alzheimer's and emphasized the vital importance of health equity in driving early detection and investing in caregivers through paid family and medical leave. Watch the full testimony below.