A-LIST Pulse of the Community: Volume 8, June 2021

The UsAgainstAlzheimer’s A-LIST® is an online community of more than 8,600 people living with Alzheimer’s and other dementias, current and former caregivers, and those concerned about brain health, who have come together to share and validate the experience of living...

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March 15, 2021

A Year of Stress, Isolation and Decline: New Survey Spotlights Effects of COVID-19 Pandemic on Alzheimer’s Patients and Caregivers

A new UsAgainstAlzheimer’s A-LIST® survey shows the coronavirus pandemic and related closures over the past year led to declines in people living with Alzheimer’s disease, disrupted daily routines, and caused severe and chronic stress on caregivers left isolated without relief or support.  

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A-LIST Pulse of the Community: Volume 7, December 2020

The UsAgainstAlzheimer’s A-LIST® is an online community of more than 8,000 people living with Alzheimer’s and other dementias, current and former caregivers, and those concerned about brain health, who have come together to share and validate the experience of living...

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Caregiver Perspectives on the Burden and Impact of Agitation in Caring for Loved Ones with Dementia/Alzheimer's Disease

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October 28, 2020

Continuing Severe Stress for Alzheimer’s Caregivers During Pandemic Now Combined with Worries about COVID-19 Effects on Upcoming Holidays

A new UsAgainstAlzheimer’s A-LIST® survey of the Alzheimer’s community shows a tough combination of more than six months of severe stress symptoms for Alzheimer’s caregivers coupled with new concerns about the effects of COVID-19 on the upcoming holidays.

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October 19, 2020 - Virginia Biggar

COVID-19 and Dementia: Lessons for the Next Pandemic

People with dementia and care partners are among those hardest hit by the COVID-19 pandemic, particularly Black and Latino families. A new UsAgainstAlzheimer’s A-LIST® survey shows ongoing closures and restrictions continue to seriously affect the memory and behaviors of those living with Alzheimer’s and other dementias, and cause enormous ongoing stress for caregivers. In our September A-LIST survey, we asked respondents, “What do you think your local, state and federal governments, and community-based groups, should be doing to help those living with dementia or mild cognitive impairment and their caregivers to prepare for the next pandemic?” Here are some of
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October 14, 2020 - Virginia Biggar

COVID-19 and Dementia: Imagining the Future with a Vaccine

With the national conversation focused on when a vaccine for COVID-19 might be approved and available, our recent UsAgainstAlzheimer’s A-LIST® survey asked the Alzheimer’s community about how their lives might change with an available vaccine. The September survey showed that 60 percent of survey respondents intend to get a COVID-19 vaccine when it is available. That’s nearly double the percentage of respondents in a recent national survey, but it still reflected concern that the vaccine development and testing was being rushed for political reasons. No community is being harder hit by a non-infectious disease in the middle of the COVID-19
September 28, 2020

New Study Shows 60 Percent of Alzheimer’s Community Intends to Take New COVID-19 Vaccine When It Becomes Available

Washington, D.C., (September 28, 2020) – A new UsAgainstAlzheimer’s A-LIST® survey of the Alzheimer’s community shows that 60 percent of survey respondents intend to get a COVID-19 vaccine when it is available – nearly double the percentage of respondents in a recent national survey.

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August 17, 2020 - Virginia Biggar

Giving Voice to What Matters Most: Dementia During COVID-19

UsAgainstAlzheimer’s series “Giving Voice to What Matters Most” features the stories of people who are living with dementia or at high risk for the disease. Tracey Lind, Daisy Duarte and Greg O’Brien recently met by Zoom to talk about issues that are important to them. By sharing their experiences, they hope to reduce stigma and misconceptions, and empower others to speak freely and live life to the fullest. In part two of the series, Tracey, Daisy and Greg talk about their experiences during the COVID-19 pandemic. Tracey Lind: In some ways, I think the shutdown was actually good for me
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