UsAgainstAlzheimer's Blog

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October 27, 2021 - UsAgainstAlzheimer's

Stephanie Monroe's Congressional Testimony on the Importance of Paid Leave

Stephanie Monroe, Executive Director of AfricanAmericansAgainst Alzheimer's, a network of UsAgainstAlzheimer's, testified before the Subcommittee on Health of the Committee on Energy and Commerce, "Caring for America: Legislation to Support Patients, Caregivers, and Providers." Ms. Monroe spoke about her experience as a family caregiver to her father who lives with Alzheimer's and emphasized the vital importance of health equity in driving early detection and investing in caregivers through paid family and medical leave. Watch the full testimony below.
June 14, 2021 - UsAgainstAlzheimer's

UsA2 Research Highlights Burdens on Alzheimer’s Caregivers of Color

New research from UsAgainstAlzheimer’s shines a light on the challenges faced by Alzheimer’s caregivers of color, especially African American and Latino, and the disconnect that exists between these caregivers and the resources that could alleviate the burden. Over a year ago, we set out to develop research exploring the unique concerns and priorities of dementia caregivers of color. Black Americans are twice as likely as non-Hispanic Whites to develop Alzheimer’s; Latinos are 1.5 times as likely. The human toll and economic burden can be devastating for people living with dementia and family caregivers, especially in underserved communities. Importantly, the needs
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August 24, 2020 - UsAgainstAlzheimer's

What Will Happen to My Loved One if I Become Sick with COVID-19? Making a Plan.

By Terry Frangiosa and Meryl Comer The personal and collective fear of “What If I Get Sick with COVID-19?” continues to dominate headlines and affect the mindset of people across the nation and much of the world. To bring it closer to home and into our own (immediate and extended) families, we all feel the angst that we could potentially infect a loved one. Compounding that angst is the stress, felt by care partners of people with Alzheimer’s disease or another dementia, who balance that apprehension 24/7, even as their loved one’s dementia continues to progress. Five UsAgainstAlzheimer’s A-LIST monthly
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August 07, 2019 - UsAgainstAlzheimer's

“A Devil of a Disease”: The Current Alzheimer’s Pipeline

This article was originally published by BioSpace on August 7, 2019. By Mark Terry As anyone following Alzheimer’s research knows, drug development for the disease has been a wasteland of failed clinical trials with literally billions of dollars thrown at drugs that have proved ineffective at preventing or halting the disease. In March 2019, in what many felt was a turning point for the industry, Cambridge, Massachusetts-based Biogen and its collaboration partner, Tokyo-based Eisai, announced they were discontinuing the global Phase III clinical trials, ENGAGE and EMERGE, of aducanumab in patients with mild cognitive impairment from Alzheimer’s and mild Alzheimer’s
July 17, 2019 - UsAgainstAlzheimer's

Welcome to the New Era of Alzheimer’s Research: How People with Alzheimer’s and Care Partners are Shaping the Future of Drug Development

This article was originally published by Lundbeck on July 17, 2019. By Mark Terry Leigh Callahan, PhD, is a respected epidemiologist and outcomes researcher who focuses on rheumatic disease. Her husband, John Winfield, MD, now retired, had a distinguished career as a researcher and rheumatologist. While their professional lives have focused principally on joints, they now find themselves at the leading edge of brain research. This is because John has Alzheimer’s, Leigh is his care partner, and together they are participating in a groundbreaking research project that seeks to generate patient/care partner insights and develop new meaningful, measurable outcomes that