The Invisible Victims of Alzheimer’s Disease: Family Caregivers

Editor's note: This piece originally appeared in the July 2013 edition of the LEAD Coalition newsletter, which you can read online here To a few close family and friends who know me as a longtime caregiver and advocate for my aging parents and (more recently) my in-laws, I have done the impossible: survived 17 years of struggling to support the needs of three-out-of-four parents who have either died from, or currently struggle with, some form of dementia. To the rest of the world, I am invisible. At 46 years old, I am a small business owner, I have a college

Was My Mom Abused?

Editor's note: This piece originally appeared on Trish's AARP Blog On July 2, USA Today reported that more than 20 former employees of a Georgia Alzheimer's care center are facing dozens of criminal charges after a three-month state investigation uncovered allegations of cruel treatments of patients. The cruelty ranged from physical abuse - slapping patients and throwing water on them - to outright neglect and financial exploitation. Other abuse included shackling patients to their beds with sheets and 'double diapering' so the staff wouldn't have to change soiled diapers so often. As it turns out, various staff members had prior

A Long, Long Way From Home

Editor's note: this piece originally appeared on Lisa's blog, My Mom, My Hero This was probably 1942 right after my mom and dad had gotten married. Dad enlisted in the Navy and mom went to work on a army base in Brooklyn, N.Y. This was over seventy years ago. Unfortunately dad passed away 18 years ago and mom has no recollection of any of this. Today my mom is not sure where her home is. When she is having a hard day she repeats many times that she wants to go home, and it is always the home that belonged

We Are Women, Hear Us Roar

Editor's note: This piece originally appeared on Huffington Post Impact Okay, so here is the Alzheimer's disease reality: Women are twice as likely as men to have Alzheimer's. Women are also twice as likely as men to be caretakers of Alzheimer's victims. Have I gotten your attention yet? We of the gentler, weaker, more adaptable sex are screwed. We're talking big numbers -- of the 5,100,000 victims of this fatal disease, 3,400,000 are women. Of the 15,000,000 caregivers, 10,000,000 are women. Many of these women have to quit their jobs because tending to Alzheimer's patients is a 24-7 job with

Ally K. - My Tribute to Daddy

My Daddy passed away from Alz in 1996..I wrote this in tribute to him the Fathers Day 0f 1996, later that week he passed away. I didnt know at the time I when wrote this, that I would someday have the right venue to share my feelings of what I was going through. I hope this helps someone out there who is living through this nightmare now as a caregiver and son or daughter of your loving Daddy. There is a stranger I've come to know... He started showing up about five years ago. He was subtle in his arrival