48 Patient Organizations Warn of Massive Coverage Losses under Final Work Reporting Requirement Rule
Washington, D.C. — (June 2, 2026) — Today, 48 non-profit, non-partisan patient organizations issued a statement in response to the interim final rule implementing the new Medicaid work reporting requirement provisions in Public Law 119-21.statement in response to the interim final rule implementing the new Medicaid work reporting requirement provisions in Public Law 119-21.
“Throughout the legislative process, lawmakers repeatedly promised that the patients we represent would not be harmed by the policies that terminate Medicaid coverage for millions of people in Public Law 119-21. Our organizations are deeply concerned the interim final rule does not protect people with serious or complex health conditions and would instead dramatically and inappropriately increase the number of people who will lose their healthcare coverage.”
“Redefining the law’s medical frailty exemption to only apply to individuals who can prove they cannot work and drastically limiting the ability of states to accept self-attestation from patients about compliance and exemptions starting in 2028 clearly conflicts with the law. These policies will place massive paperwork burdens on patients and providers, upend months of planning by states and create chaos just months away from the January 2027 implementation deadline.”
“While it is impossible to fully shield patients from the impact of the devastating cuts coming to the Medicaid program, our groups are committed to working with federal and state policymakers throughout the implementation process to set policies that protect access to Medicaid. We urge CMS to adopt a definition of medical frailty and processes to document compliance that protect patients and are consistent with the law.”
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Alpha-1 Foundation
ALS Association
American Cancer Society Cancer Action Network
American Heart Association
American Kidney Fund
American Liver Foundation
American Lung Association
Arthritis Foundation National Health Council
Asthma and Allergy Foundation of America
Association National Multiple Sclerosis Foundation
Blood Cancer United
CancerCare
Cancer Nation
Cancer Support Community
Crohn's & Colitis Foundation
Cystic Fibrosis Foundation
Diabetes Patient Advocacy Coalition
Epilepsy Foundation of America
EveryLife Foundation for Rare Diseases
Family Voices National
Foundation for Sarcoidosis Research (FSR)
Hemophilia Federation of America
Hypertrophic Cardiomyopathy Association
Legal Action Center
Lupus Foundation of America
Lutheran Services in America
March of Dimes
Muscular Dystrophy Association
National Alliance on Mental Illness
National Bleeding Disorders Foundation
National Kidney Foundation Autoimmune
National Organization for Rare Disorders
National Patient Advocate Foundation
National Psoriasis Foundation
Parkinson’s Foundation
Pulmonary Hypertension Association
Sickle Cell Disease Association of America, Inc.
Susan G. Komen
The AIDS Institute
The Coalition for Hemophilia B
UsAgainstAlzheimer's
Volunteers of America
WomenHeart
ZERO Prostate Cancer
About UsAgainstAlzheimer’s
UsAgainstAlzheimer’s is engaged in a relentless pursuit to end Alzheimer’s, the sixth leading killer in America. Our work centers on prevention, early detection and diagnosis, and equal access to treatments regardless of gender, race, or ethnicity. To achieve our mission, we give voice to patients and caregivers while partnering with government, scientists, the private sector, and allied organizations—the people who put the “Us” in UsAgainstAlzheimer’s.
Contact: Chantez Bailey, [email protected]