UsAgainstAlzheimer's Blog

Stay up to date on the latest from UsAgainstAlzheimer's on our blog. Read about what our team is working on, the latest advancements in research, and what you can do to join the fight.

Working with UsAgainstAlzheimer’s and Voices of Alzheimer’s, Jay Reinstein takes you with him to better understand a day in the life of someone living with Alzheimer’s.

View Jay's Journal Women of UsAgainstAlzheimer's.

December 09, 2021 - Greg O'Brien

Congress Should Act: Paid Leave for Caregivers Essential in the Battle with Dementia

“I got plenty of money; it’s just tied up in debt,” as the saying goes. Humor often has a way of getting to the point. The debt and associated burdens are mounting at staggering levels for caregivers of those afflicted with Alzheimer’s, other forms of dementia, and other serious illnesses. There are an estimated 53 million family caregivers in the United States—16 million providing dementia care who too often are caught in an unsustainable conflict between caregiving and work responsibilities. I know this path well—first as a family caregiver, and now as one diagnosed with Alzheimer’s and being helped by
October 28, 2021 - Greg O'Brien

A Letter to Doctors: Talk with Your Patients about Brain Health and Alzheimer’s Disease

Editor’s note: This blog post is an open letter to the medical community from UsAgainstAlzheimer’s board member Greg O’Brien, who suffers from and lives daily with Alzheimer’s, about how doctors can improve the diagnosis of Alzheimer’s and other dementias; care in the early stages of the disease; and the critical importance of a candid dialogue about brain health. Dear Primary Care and Family Doctors, As T.S. Eliot has said: “We shall not cease from exploration, and the end of all our exploring will be to arrive where we started, and know the place for the first time.” Alzheimer’s has been
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October 27, 2021 - UsAgainstAlzheimer's

Stephanie Monroe's Congressional Testimony on the Importance of Paid Leave

Stephanie Monroe, Executive Director of AfricanAmericansAgainst Alzheimer's, a network of UsAgainstAlzheimer's, testified before the Subcommittee on Health of the Committee on Energy and Commerce, "Caring for America: Legislation to Support Patients, Caregivers, and Providers." Ms. Monroe spoke about her experience as a family caregiver to her father who lives with Alzheimer's and emphasized the vital importance of health equity in driving early detection and investing in caregivers through paid family and medical leave. Watch the full testimony below.
October 21, 2021

Mandy Moore Raises Awareness of Alzheimer’s On and Off Screen

She plays a character with dementia on the TV show This Is Us. In real life, the actor is joining the fight against Alzheimer's disease. * This article was originally published in Brain&Life Magazine . After filming her last scene for the 2019 Thanksgiving episode of This Is Us, a decades-spanning NBC drama, Mandy Moore rushed back to her trailer, shut the door, and burst into tears. “I had all this emotion pent up that I was holding back, and I had to let it go,” she recalls. In that episode, her character, Rebecca, finally admits to her son Randall
September 16, 2021 - Greg O'Brien

Who Pulled the Plug on Hope for an Alzheimer’s Treatment?

Hope springs eternal… But does it really today in this age of personal and professional second-guessing and gotcha? If we wait for perfection, is there hope? Wrote Alexander Pope, in the 1700s, considered among the foremost English poets in the 18th century: “Hope springs eternal in the human breast; Man never Is, but always To be blest. The soul, uneasy, and confin'd from home, Rests and expatiates in a life to come.” — An Essay On Man Pope, sadly, may not have been a poet before his time, but of his time. Time understandably changes perspectives—from the pure hope of