Before I forget.

Written by Trish Vradenburg and Special Guests

By 2020 Blog

November 29, 2016 - Loretta Woodward Veney

When my mom was diagnosed with dementia, I started writing down things that she said or asked.

At first it was a way to hold onto the memories she was losing. But as the disease progressed, I’ve seen how her wisdom and humor continue to shine through the darkness of Alzheimer’s disease. Living in the moment is a challenge for all of us facing this disease, alongside loved ones stuck between the disappearing past and the uncertain future.

November 7, 2016 - Trish Vradenburg

My mother - Bea Lerner - was diagnosed with Alzheimer’s disease in 1987. At the time, I barely knew what the disease was. What I did know is there was no cure. I thought my mom was invincible, but she was no match for Alzheimer’s. I watched helplessly as her mind, her dignity, her soul and finally her body succumbed to this killer. In just a few short years she disappeared into the unforgiving chasm of this deadly disease. (Continue reading on Huffington Post.)

October 14, 2016 - Dr. Daniel C. Potts

I want to thank George and Trish Vradenburg for channeling hope through heartache, guiding us in the impassioned mission to find a cure for Alzheimer's disease. Your fervent leadership is helping to usher in a time of unprecedented progress, and promising developments are reported weekly. This would be impossible without the major increase in funding you have helped to secure.

September 7, 2016 - Elizabeth Plant

UsAgainstAlzheimer’s mission is to end Alzheimer’s by 2020. We fight for increased investment in research; greater collaboration across industry, science and government; acceleration of clinical trials; and improved quality of life for people living with dementia and their caregivers.

August 24, 2016 - Ann Napoletan

“Together we can magnify our voice. Validate our journey. Help others too.”   ~Meryl Comer, Caregiver, Advocate, and President, Geoffrey Beene Foundation Alzheimer’s Initiative

So often, we, as caregivers, feel isolated, alone, and misunderstood. We talk, but is anyone really listening? Does anyone even care what we have to say?

August 15, 2016 - Trish Vradenburg

At Hadassah’s recent National Convention, I had the honor of moderating a panel about gender equity in medicine, including the disparity of sex based research. Hadassah connects Jewish women and empowers them to effect change through advocacy and advancing health and well-being, and is a dedicated supporter of Israel.

June 18, 2016 - Lisette Carbajal

Imagine – it’s Father’s Day on Sunday, and while most people are wondering what to get for their father, you’re at home knowing that despite whatever you get for him, it will not have the same meaning. You reminisce about what your father may have wanted before everything came crashing down. You remember how your dad was a handyman before it all fell to pieces.  You remember that summer you spent with your dad building a picket fence because he was determined to make the front yard perfect.

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June 15, 2016 - Stephanie Monroe

For those of us who work with patients and in advocacy, a common occupational hazard is to speak of people with serious illnesses in the collective sense. That’s easy to do in discussing Alzheimer’s disease because the overall statistics are so jarring – more than five million people are afflicted with this terrible illness, a number expected to nearly triple by the year 2050. It is a disease that, at this time, has no cure.

May 16, 2016 - Trish Vradenburg

Diane Rehm, the treasured NPR host of The Diane Rehm Show (and friend to UsAgainstAlzheimer’s), has written a deeply personal, profoundly moving, incredibly honest book about her life before and after her husband’s death. Diane and John were married for 54 years.

May 9, 2016 - Peggy Bargmann

The United Methodist Church is leading in the fight against Alzheimer's as a partner with us in the Faith United Against Alzheimer's Coalition. Many congregations are doing important work supporting those with Alzheimer's and their families, including First United Methodist Church of Winter Park, Florida. Thank you to Director Peggy Bargmann for this piece on the Brain Fitness Club. ~ Trish

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