Before I forget.

Written by Trish Vradenburg and Special Guests

By 2020 Blog

March 7, 2017 - Jason Resendez

There are over 15 million family caregivers providing care for a loved one living with Alzheimer’s disease or another form of dementia yet these stories are rarely found in the media, particularly the experiences of the black and brown folks that often struggle to access a diagnosis, treatment and care support. (Continue reading on Huffington Post)

February 28, 2017 - Jill Lesser and Stephanie Monroe

Two major advocacy campaigns are underway in February: Black History Month and Heart Health Month. While their connection to Alzheimer’s disease may not be obvious, each is vitally important. (Continue reading in Morning Consult.)

 

February 13, 2017 - Marie Marley

One night I was helping Ed, my Romanian life partner of 30 years, pay his bills. He’d been showing signs of dementia and always needed assistance with that task. Unfortunately, I put the stamp on an envelope a little askew. When Ed noticed, he lost it.

“Marie,” he hollered, putting his glass of vodka down forcefully and slamming his fist on the table. “Look what you did. It’s crooked. You r-r-ruined a perfectly good stamp!”

February 6, 2017 - Jill Lesser

In the United States, a change of administration always brings uncertainty. With new leaders entering Congress and the White House, we at WomenAgainstAlzheimer's (WA2) know we can turn that uncertainty into opportunity. Opportunity because we know finding a cure for Alzheimer’s and alleviating its burden on families can bring us together. WA2 is committed to continuing to lead a campaign to promote women’s brain health and fight against Alzheimer’s. 2017 is a critical year in our battle to stop Alzheimer’s in its tracks by 2020. 

January 27, 2017 - Michael Ellenbogen

As a person who is living with Alzheimer’s, I have very mixed feelings about how I should talk about it. I have become an outspoken advocate in the dementia arena, but I feel like I am always at odds with so many. And it is sometimes hard for me to decide what my message should be. Should it be about living life to the fullest or all doom and gloom about the horrible disease?

January 10, 2017 - Karen Garner

Last year, my husband, Jim, lost his 7-year battle with early-onset Alzheimer’s disease. He was just 53 years old. It hurt to spend the holidays without him. But as I reflect on the most difficult year of my life, I’m filled with gratitude for all those who find the strength to keep fighting this devastating disease.

December 19, 2016 - Ann Napoletan

When my mother was alive, every year as the holidays approached I found myself struggling to come up with gift ideas for her. She was living with Alzheimer’s, and I wanted to get something useful that she would enjoy. Not something that would end up in a drawer or closet never to be seen again. However, as her dementia progressed, the options dwindled, requiring more and more creativity.

December 13, 2016 - Trish Vradenburg

The recent announcement by Eli Lilly that a new drug intended to slow memory loss in people with Alzheimer’s had failed a late-stage clinical trial felt like a punch in the gut. Look, I know that finding a treatment for dementia is a complex, Herculean task. But I was so sure that this time it was going to happen. And when it didn’t, I knew the devastation that the thousands of people who volunteered for this clinical trial must have felt, as well as the dedicated Eli Lilly researchers and all those who’d devoted their time and energy to crushing this relentless killer.

December 12, 2016 - Ann Napoletan

When your loved one is living with dementia, the holidays are bound to change. While this can feel very sad and like a loss, it doesn’t have to be a bad thing. With each stage, consider creating new traditions or modifying old ones in a way that allows you to meet your loved one right where they are. My mom was always the center of our holiday celebrations. For as long as I remembered, she prepared a smaller version of the Italian Feast of Seven Fishes on Christmas Eve. She made it look so effortless - I think she could have whipped up that beautiful spread in her sleep!

December 5, 2016 - Karen Segal

UsAgainstAlzheimer's and I are grateful to Veronica Beard for including us as part of the #VBGIVESBACK program. Veronica Beard will donate $10 of every VeronicaBeard.com order in December to the cause. My mother was diagnosed with Alzheimer's disease in 2002 and I learned firsthand how challenging it is to juggle family life and caring for my mother.

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