A-LIST Pulse of the Community Vol 14, December 2022

The mission of the A-LIST is to use survey results to make life better for the broader Alzheimer’s and dementia community. UsAgainstAlzheimer’s makes sure policymakers, researchers, healthcare providers, drug developers, insurers and others who serve this community understand and consider A-LIST member insights about the Alzheimer’s and dementia journey when making decisions that affect those living with the disease and caregivers. Read the full newsletter here.

A-LIST Pulse of the Community Vol 12, August 2022

The mission of the A-LIST is to leverage data to make life better for the Alzheimer’s and dementia community. UsAgainstAlzheimer’s shares our findings with policymakers, researchers, health care providers, public health officials, drug developers, insurers and others who serve this community to ensure they consider these insights when making decisions affecting people living with the disease and their caregivers. Read the full newsletter here.

A-LIST Pulse of the Community Vol 11, May 2022

The mission of the A-LIST is to use survey results to make life better for the broader Alzheimer’s andbdementia community.

COVID-19 and Dementia: Lessons for the Next Pandemic

People with dementia and care partners are among those hardest hit by the COVID-19 pandemic, particularly Black and Latino families. A new UsAgainstAlzheimer’s A-LIST® survey shows ongoing closures and restrictions continue to seriously affect the memory and behaviors of those living with Alzheimer’s and other dementias, and cause enormous ongoing stress for caregivers. In our September A-LIST survey, we asked respondents, “What do you think your local, state and federal governments, and community-based groups, should be doing to help those living with dementia or mild cognitive impairment and their caregivers to prepare for the next pandemic?” Here are some of

COVID-19 and Dementia: Imagining the Future with a Vaccine

With the national conversation focused on when a vaccine for COVID-19 might be approved and available, our recent UsAgainstAlzheimer’s A-LIST® survey asked the Alzheimer’s community about how their lives might change with an available vaccine. The September survey showed that 60 percent of survey respondents intend to get a COVID-19 vaccine when it is available. That’s nearly double the percentage of respondents in a recent national survey, but it still reflected concern that the vaccine development and testing was being rushed for political reasons. No community is being harder hit by a non-infectious disease in the middle of the COVID-19

A-LIST Pulse of the Community (Archive 2018-2020)

A-LIST Pulse of the Community: Volume 1, Spring 2018 A-LIST Pulse of the Community: Volume 2, Fall 2018 A-LIST Pulse of the Community: Volume 3, Spring 2019 A-LIST Pulse of the Community: Volume 4, Fall 2019 A-LIST Pulse of the Community: Volume 5, Spring 2020 A-LIST Pulse of the Community: Volume 6, April 2020

Giving Voice to What Matters Most: Days Mush Together

UsAgainstAlzheimer’s series “Giving Voice to What Matters Most”— features the stories of people who are living with dementia or at high risk for the disease. Tracey Lind, Greg O’Brien and Daisy Duarte recently met by Zoom to talk about issues that are important to them. By sharing their experiences, they hope to reduce stigma and misconceptions about dementia, and empower others to speak freely and live life to the fullest. In this episode, Tracey, Daisy and Greg talk about how they manage day to day, including during the COVID-19 pandemic. Tracey Lind: In some ways it’s easier because we’re really

Physicians & Caregivers: A needed partnership in the fight against Alzheimer’s

“How are you doing?” That simple, common question conveys caring and concern. Nearly a decade ago, the American College of Physicians (ACP) recommended that doctors ask this question of those who care for older or chronically ill patients. But according to a new A-LIST® survey, caregivers don’t hear those words often enough from health care providers. The A-LIST® is an online community of individuals living with or caring for those living with Alzheimer’s or other dementias. Members participate in various studies and research projects, providing unique, self-reported data that represents the voice of the patient and caregiver community. This caregiver-focused