The release of the Alzheimer's stamp represents eighteen years of continuous effort on the part of friend and fellow advocate Kathy Siggins, and nine years of continuous effort on my part. If you think that one or two people cannot make a difference, I hope you will read on and take this as proof that each of us can.
Caregivers of people living with Alzheimer’s disease must make some extremely difficult decisions. One decision they may face is whether to place their loved one in a care facility of some type. Virtually no one wants to do it and few if any people want to go. This will be one of the most difficult, heart-wrenching decisions you, as an Alzheimer’s caregiver, will ever have to make.
My grandmother was diagnosed with Alzheimer’s disease when I was 4 years old. (I am now 9 years old). I wanted to help care for her, so my mom gave me easy puzzles to solve with my Grandma. I felt like I was doing a good thing because when we worked on puzzles we were both very happy. As the years went by, I learned about different ways of helping my grandmother.
As a person who is living with Alzheimer’s, I have very mixed feelings about how I should talk about it. I have become an outspoken advocate in the dementia arena, but I feel like I am always at odds with so many. And it is sometimes hard for me to decide what my message should be. Should it be about living life to the fullest or all doom and gloom about the horrible disease?
USAgainstAlzheimer's Associate Directors Virginia Biggar, Stephanie Monroe and Jennifer Molinoff appeared on the August 6 episode of Alzheimer's Speaks Radio to discuss the latest activities of ActivistsAgainstAlzheimer's, the African American Network Against Alzheimer's, and WomenAgainstAlzheimer's, and explain how individuals can get more involved. Listen to the whole show online here!
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