Featured Stories

  • Fischer L. - Drops for Nancy Larsen

  • Phyllis P. - Caregiving x 5

  • Lisette C. - My Best Friend

  • Deborah B. - My Beautiful Mom

  • Heidi Hoyt - Caregiver Support: The Data Is In

  • Joyce H. - The Story of Edna P.

  • Brian S. - Dementia at Age 32

  • Max W. - From Child to Caregiver to Alzheimer's Researcher and Advocate

  • Karen G. - Missing Jim

  • Enrique L. - U.S.M.C. Corporal

Your voice helps bring Alzheimer's out of the shadows.

Join our community of story tellers united in their determination to stop Alzheimer's! Share your personal story, a photo of a loved one, or a video telling us about your experience.

Together, we can show our leaders in Washington and beyond why we must make finding a cure for Alzheimer's a national priority!

Sons and Daughters

field_story_video['und'][0]['uri'])) { $file = (object)$entity->field_story_video['und'][0]; if ($file->filemime == 'video/youtube') { $display = array(); $display['settings']['image_style'] = 'blog_images'; $image_array = media_youtube_file_formatter_image_view($file, $display, 'und'); $image = drupal_render($image_array); } } else if (isset($entity->field_story_photos['und'][0]['uri'])) { $image = theme('image_style', array('style_name' => 'blog_images', 'path' => $entity->field_story_photos['und'][0]['uri'])); } if (!empty($image)) { echo '
' . $image . '
'; } ?>

Mom passed almost 4 years ago from Alzheimer's. It was heart breaking to watch the best parts of her personality fade away. Mom's kind, loving, trusting traits disappeared and changed into hateful outbursts, paranoid thoughts and fear filled behavior. At first we had no idea what was happening to her. We were unable to keep her safe as she wandered at night, made up lies to cover the confusion in her mind, and her multiple falls leading to broken bones. As the Alzheimer's progressed, she required expensive 24-hour care. The disease divided our family as we watched mom's suffering.

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Sons and Daughters
field_story_video['und'][0]['uri'])) { $file = (object)$entity->field_story_video['und'][0]; if ($file->filemime == 'video/youtube') { $display = array(); $display['settings']['image_style'] = 'blog_images'; $image_array = media_youtube_file_formatter_image_view($file, $display, 'und'); $image = drupal_render($image_array); } } else if (isset($entity->field_story_photos['und'][0]['uri'])) { $image = theme('image_style', array('style_name' => 'blog_images', 'path' => $entity->field_story_photos['und'][0]['uri'])); } if (!empty($image)) { echo '
' . $image . '
'; } ?>

We built a very nice garage apartment for my widowed mother 8 years ago. She was 86 years old, still driving and had just given up her volunteer job in a local hospital gift shop. She was an avid reader and walked at least 1 mile a day. She was extremely active for an 86 year old. A couple of years ago when she was approximately 92 years old we began to see dramatic changes in her emotional and mental health. At 92 years of age she was in great physical condition.

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Sons and Daughters
field_story_video['und'][0]['uri'])) { $file = (object)$entity->field_story_video['und'][0]; if ($file->filemime == 'video/youtube') { $display = array(); $display['settings']['image_style'] = 'blog_images'; $image_array = media_youtube_file_formatter_image_view($file, $display, 'und'); $image = drupal_render($image_array); } } else if (isset($entity->field_story_photos['und'][0]['uri'])) { $image = theme('image_style', array('style_name' => 'blog_images', 'path' => $entity->field_story_photos['und'][0]['uri'])); } if (!empty($image)) { echo '
' . $image . '
'; } ?>

A bit about my mom. She was diagnosed with Alzheimer’s in 2009. We could see changes in her as early as 2006, but I guess we all just thought nothing was wrong and Alzheimer’s never enter our minds till about 2008 when things really started to get out of hand with her. She started calling me telling me the same story day after day, sometimes 3 of 4 times in one day. Then she started saying someone was taking things out of her house. I kept telling her no one was taking anything out. I had told my step dad to go to the Doctors with her and talk to them about what was going on.

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Sons and Daughters
field_story_video['und'][0]['uri'])) { $file = (object)$entity->field_story_video['und'][0]; if ($file->filemime == 'video/youtube') { $display = array(); $display['settings']['image_style'] = 'blog_images'; $image_array = media_youtube_file_formatter_image_view($file, $display, 'und'); $image = drupal_render($image_array); } } else if (isset($entity->field_story_photos['und'][0]['uri'])) { $image = theme('image_style', array('style_name' => 'blog_images', 'path' => $entity->field_story_photos['und'][0]['uri'])); } if (!empty($image)) { echo '
' . $image . '
'; } ?>

Toni made this moving and highly personal video about her family's experience caring for her mother who has Alzheimer's disease. Toni, her husband and four young children explain the facts and warning signs of Alzheimer's and their personal and often positive ways of coping with dementia.

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Sons and DaughtersActivists
field_story_video['und'][0]['uri'])) { $file = (object)$entity->field_story_video['und'][0]; if ($file->filemime == 'video/youtube') { $display = array(); $display['settings']['image_style'] = 'blog_images'; $image_array = media_youtube_file_formatter_image_view($file, $display, 'und'); $image = drupal_render($image_array); } } else if (isset($entity->field_story_photos['und'][0]['uri'])) { $image = theme('image_style', array('style_name' => 'blog_images', 'path' => $entity->field_story_photos['und'][0]['uri'])); } if (!empty($image)) { echo '
' . $image . '
'; } ?>

My mother, Lillie, began showing signs of memory loss in 2008. In November of 2008 she received a pacemaker. For several months after receiving the pacemaker her memory was fine. About June of 2009, I began to notice that my mother's memory was on the decline again. I became so depressed I sought therapy. I was seeing three counselors. One was a Psychiatrist, the other a MFCC, and a Christian therapist at my church. The MFCC suggested that I join a support group for Alzheimer's caregivers.

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ActivistsSons and Daughters
field_story_video['und'][0]['uri'])) { $file = (object)$entity->field_story_video['und'][0]; if ($file->filemime == 'video/youtube') { $display = array(); $display['settings']['image_style'] = 'blog_images'; $image_array = media_youtube_file_formatter_image_view($file, $display, 'und'); $image = drupal_render($image_array); } } else if (isset($entity->field_story_photos['und'][0]['uri'])) { $image = theme('image_style', array('style_name' => 'blog_images', 'path' => $entity->field_story_photos['und'][0]['uri'])); } if (!empty($image)) { echo '
' . $image . '
'; } ?>

We were a typical middle-class American family leading typical busy lives...until Alzheimer's entered the door. There was so much we did not know, so much we had to learn, and the learning curve was very steep like riding the space shuttle really fast, straight up. When dealing with a parent who is slowly losing their mind before your very eyes, it is important to maintain a sense of humor. We relied on our ability to laugh together when Mother aimed the TV remote control at the microwave and expected Andy of Mayberry to show up on the little window.

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Sons and Daughters
field_story_video['und'][0]['uri'])) { $file = (object)$entity->field_story_video['und'][0]; if ($file->filemime == 'video/youtube') { $display = array(); $display['settings']['image_style'] = 'blog_images'; $image_array = media_youtube_file_formatter_image_view($file, $display, 'und'); $image = drupal_render($image_array); } } else if (isset($entity->field_story_photos['und'][0]['uri'])) { $image = theme('image_style', array('style_name' => 'blog_images', 'path' => $entity->field_story_photos['und'][0]['uri'])); } if (!empty($image)) { echo '
' . $image . '
'; } ?>

My beloved father, Maurice died in 2004 from what we were told was probably Alzheimer’s. (We were told that without a brain autopsy one can't be 100% sure.) My husband and I moved to South Carlolina in 1995 to be near my elderly parents to help my 5' 2" petite Mom care for my 6'2" tall Dad. My Dad was educated at Princeton and Tufts. He had been a successful executive, served his country in WWII in the Navy, and served his church & community for many, many years in leadership roles.

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Sons and Daughters
field_story_video['und'][0]['uri'])) { $file = (object)$entity->field_story_video['und'][0]; if ($file->filemime == 'video/youtube') { $display = array(); $display['settings']['image_style'] = 'blog_images'; $image_array = media_youtube_file_formatter_image_view($file, $display, 'und'); $image = drupal_render($image_array); } } else if (isset($entity->field_story_photos['und'][0]['uri'])) { $image = theme('image_style', array('style_name' => 'blog_images', 'path' => $entity->field_story_photos['und'][0]['uri'])); } if (!empty($image)) { echo '
' . $image . '
'; } ?>

My father just passed away 3 weeks ago from Alzheimer's disease. I am his daughter...I was his caretaker for a year and half before he passed. His life was an active healthy life till this happened. We never knew what hit us. It was a slow and very long nightmare. It was heartbreaking and exhausting. It was enlightening yet hopeless. He was brave put powerless to stop his brain from dying a slow death. He was helpless and so were those who loved him. He would never again have a normal life....there was no more normal for him or those who cared for him.

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Sons and Daughters
field_story_video['und'][0]['uri'])) { $file = (object)$entity->field_story_video['und'][0]; if ($file->filemime == 'video/youtube') { $display = array(); $display['settings']['image_style'] = 'blog_images'; $image_array = media_youtube_file_formatter_image_view($file, $display, 'und'); $image = drupal_render($image_array); } } else if (isset($entity->field_story_photos['und'][0]['uri'])) { $image = theme('image_style', array('style_name' => 'blog_images', 'path' => $entity->field_story_photos['und'][0]['uri'])); } if (!empty($image)) { echo '
' . $image . '
'; } ?>

My Mother will be 87 in June. She has had Alzheimers for 10 years. When we could not longer care for her at home, she was placed in a great facility for Alzheimer patients. Through the 10 years, my Mother has been so very happy, cordial, loves music, dances, and loves people. On the other hand, she knows not her family, knows not what she eats, where to go, where to stay, and has to be shown and helped with all aspects of her care. I wrote my grief down on paper, and wrote a song called "Fading Memories", had it recorded, and thought I could really do some good for Alzheimers.

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Sons and Daughters
field_story_video['und'][0]['uri'])) { $file = (object)$entity->field_story_video['und'][0]; if ($file->filemime == 'video/youtube') { $display = array(); $display['settings']['image_style'] = 'blog_images'; $image_array = media_youtube_file_formatter_image_view($file, $display, 'und'); $image = drupal_render($image_array); } } else if (isset($entity->field_story_photos['und'][0]['uri'])) { $image = theme('image_style', array('style_name' => 'blog_images', 'path' => $entity->field_story_photos['und'][0]['uri'])); } if (!empty($image)) { echo '
' . $image . '
'; } ?>

My father, Patrick Johnston, passed away at the age of 79 on December 20, 2011. He began to show signs of dementia in 2007. As he moved into the middle and latter stages of Alzheimer's disease, he would wander, have hallucinations and was unable to dress himself and perform toileting duties.

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