Featured Stories

  • Fischer L. - Drops for Nancy Larsen

  • Phyllis P. - Caregiving x 5

  • Lisette C. - My Best Friend

  • Deborah B. - My Beautiful Mom

  • Heidi Hoyt - Caregiver Support: The Data Is In

  • Joyce H. - The Story of Edna P.

  • Brian S. - Dementia at Age 32

  • Max W. - From Child to Caregiver to Alzheimer's Researcher and Advocate

  • Karen G. - Missing Jim

  • Enrique L. - U.S.M.C. Corporal

Your voice helps bring Alzheimer's out of the shadows.

Join our community of story tellers united in their determination to stop Alzheimer's! Share your personal story, a photo of a loved one, or a video telling us about your experience.

Together, we can show our leaders in Washington and beyond why we must make finding a cure for Alzheimer's a national priority!

Sons and Daughters

field_story_video['und'][0]['uri'])) { $file = (object)$entity->field_story_video['und'][0]; if ($file->filemime == 'video/youtube') { $display = array(); $display['settings']['image_style'] = 'blog_images'; $image_array = media_youtube_file_formatter_image_view($file, $display, 'und'); $image = drupal_render($image_array); } } else if (isset($entity->field_story_photos['und'][0]['uri'])) { $image = theme('image_style', array('style_name' => 'blog_images', 'path' => $entity->field_story_photos['und'][0]['uri'])); } if (!empty($image)) { echo '
' . $image . '
'; } ?>

My father has been very sick with Alzheimer's Disease and/or Related Dementia, increasingly since 2008.  Since that time I decided to begin treating him with music and, in May 2011, to begin videotaping sessions with him.  These initial interviews have blossomed into a 2+ years and runing feature film project which I wish to share with everyone to give hope, solidarity and to increase awareness and speed of cure for these terrible diseases. 

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Sons and Daughters
field_story_video['und'][0]['uri'])) { $file = (object)$entity->field_story_video['und'][0]; if ($file->filemime == 'video/youtube') { $display = array(); $display['settings']['image_style'] = 'blog_images'; $image_array = media_youtube_file_formatter_image_view($file, $display, 'und'); $image = drupal_render($image_array); } } else if (isset($entity->field_story_photos['und'][0]['uri'])) { $image = theme('image_style', array('style_name' => 'blog_images', 'path' => $entity->field_story_photos['und'][0]['uri'])); } if (!empty($image)) { echo '
' . $image . '
'; } ?>

*From a memorial service that we had for my Dad’s caregivers.

Aside from my family, there is no one in this room who knew my Dad before last year so I thought I would take a few minutes to introduce you.

Frank McDermott was actually born Francis, but everyone called him Frank or Frankie.  In his 50’s he decided that he had enough of signing his name on official documents as Francis so he legally changed his name to Frank.  He was just very practical that way.

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Sons and Daughters
field_story_video['und'][0]['uri'])) { $file = (object)$entity->field_story_video['und'][0]; if ($file->filemime == 'video/youtube') { $display = array(); $display['settings']['image_style'] = 'blog_images'; $image_array = media_youtube_file_formatter_image_view($file, $display, 'und'); $image = drupal_render($image_array); } } else if (isset($entity->field_story_photos['und'][0]['uri'])) { $image = theme('image_style', array('style_name' => 'blog_images', 'path' => $entity->field_story_photos['und'][0]['uri'])); } if (!empty($image)) { echo '
' . $image . '
'; } ?>

My Daddy passed away from Alz in 1996..I wrote this in tribute to him the Fathers Day 0f 1996, later that week he passed away. I didnt know at the time I when wrote this, that I would someday have the right venue to share my feelings of what I was going through. I hope this helps someone out there who is living through this nightmare now as a caregiver and son or daughter of your loving Daddy.

There is a stranger I've come to know...

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Sons and Daughters
field_story_video['und'][0]['uri'])) { $file = (object)$entity->field_story_video['und'][0]; if ($file->filemime == 'video/youtube') { $display = array(); $display['settings']['image_style'] = 'blog_images'; $image_array = media_youtube_file_formatter_image_view($file, $display, 'und'); $image = drupal_render($image_array); } } else if (isset($entity->field_story_photos['und'][0]['uri'])) { $image = theme('image_style', array('style_name' => 'blog_images', 'path' => $entity->field_story_photos['und'][0]['uri'])); } if (!empty($image)) { echo '
' . $image . '
'; } ?>

My Father lived a good life, which I know from the great stories he would tell, and the songs he would sing. My father had many friends, from all walks of life. He was a Pipefitter by profession, and was a member of the Union. He loved to work in his garage and always kept his hands busy. He was always working on a neighbor’s car, fixing a friend’s boiler or doing some type of job after he retired. He had this big red GMC truck that had one of those horns that went….AAAAWWWWOOOOGGGGAH.

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Sons and Daughters
field_story_video['und'][0]['uri'])) { $file = (object)$entity->field_story_video['und'][0]; if ($file->filemime == 'video/youtube') { $display = array(); $display['settings']['image_style'] = 'blog_images'; $image_array = media_youtube_file_formatter_image_view($file, $display, 'und'); $image = drupal_render($image_array); } } else if (isset($entity->field_story_photos['und'][0]['uri'])) { $image = theme('image_style', array('style_name' => 'blog_images', 'path' => $entity->field_story_photos['und'][0]['uri'])); } if (!empty($image)) { echo '
' . $image . '
'; } ?>

Manchester Center Mall that is the name of my mom's favorite place. She visits that place everyday 365 days, she'll go not just once she'll go two and even 3 times in a day. Manchester Center is 3.4 miles from home, my little mom she walks going and coming she used to take the bus but not really anymore. You see sometimes when she does take the bus she gets lost, she wont recongize her surroundings, she doesnt recongize most of her surroundings anymore. Alzheimers has taken that away from her and it keeps taking and taking.

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Sons and Daughters
field_story_video['und'][0]['uri'])) { $file = (object)$entity->field_story_video['und'][0]; if ($file->filemime == 'video/youtube') { $display = array(); $display['settings']['image_style'] = 'blog_images'; $image_array = media_youtube_file_formatter_image_view($file, $display, 'und'); $image = drupal_render($image_array); } } else if (isset($entity->field_story_photos['und'][0]['uri'])) { $image = theme('image_style', array('style_name' => 'blog_images', 'path' => $entity->field_story_photos['und'][0]['uri'])); } if (!empty($image)) { echo '
' . $image . '
'; } ?>

My mother, Evelyn Bernstein, is 89 years old. After a hip fracture in 2009, my family moved her from San Diego to Los Angeles, to be closer to us. We began to notice cognitive changes, which have increased to a state of substantial memory loss, delusional thinking, and disorientation. My mother was not only bright and articulate, she had the sharpest memory of anyone we knew. I am a psychologist in private practice, and I teach medical students, but nothing in my training or years of experience have prepared me for confronting what is known as an "ambiguous loss" of a loved one.

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Sons and Daughters
field_story_video['und'][0]['uri'])) { $file = (object)$entity->field_story_video['und'][0]; if ($file->filemime == 'video/youtube') { $display = array(); $display['settings']['image_style'] = 'blog_images'; $image_array = media_youtube_file_formatter_image_view($file, $display, 'und'); $image = drupal_render($image_array); } } else if (isset($entity->field_story_photos['und'][0]['uri'])) { $image = theme('image_style', array('style_name' => 'blog_images', 'path' => $entity->field_story_photos['und'][0]['uri'])); } if (!empty($image)) { echo '
' . $image . '
'; } ?>

This is about my mother, Thelma, and the killer called Alzheimer's. My mother has end stage ALZHEIMER'S. None of the medication helped her. She remains at home with her handicapped husband due to medicaid denying her medical insurance which would pay for her to go to a nursing home. This is a family in crisis. I hope this can help someone.

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Sons and Daughters
field_story_video['und'][0]['uri'])) { $file = (object)$entity->field_story_video['und'][0]; if ($file->filemime == 'video/youtube') { $display = array(); $display['settings']['image_style'] = 'blog_images'; $image_array = media_youtube_file_formatter_image_view($file, $display, 'und'); $image = drupal_render($image_array); } } else if (isset($entity->field_story_photos['und'][0]['uri'])) { $image = theme('image_style', array('style_name' => 'blog_images', 'path' => $entity->field_story_photos['und'][0]['uri'])); } if (!empty($image)) { echo '
' . $image . '
'; } ?>

My Mother-

I think that people often think of dementia as someone slowly losing their memory – and of course it is that, but it is so much more.

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Sons and Daughters
field_story_video['und'][0]['uri'])) { $file = (object)$entity->field_story_video['und'][0]; if ($file->filemime == 'video/youtube') { $display = array(); $display['settings']['image_style'] = 'blog_images'; $image_array = media_youtube_file_formatter_image_view($file, $display, 'und'); $image = drupal_render($image_array); } } else if (isset($entity->field_story_photos['und'][0]['uri'])) { $image = theme('image_style', array('style_name' => 'blog_images', 'path' => $entity->field_story_photos['und'][0]['uri'])); } if (!empty($image)) { echo '
' . $image . '
'; } ?>

I think this is the sweetest story in the world. I will warn you that it might make your allergies act up and your eyes water a bit. I know it has that impact on me every time I think about it. It is about my mom and dad and I thought I would honor them today and post this:

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Sons and Daughters
field_story_video['und'][0]['uri'])) { $file = (object)$entity->field_story_video['und'][0]; if ($file->filemime == 'video/youtube') { $display = array(); $display['settings']['image_style'] = 'blog_images'; $image_array = media_youtube_file_formatter_image_view($file, $display, 'und'); $image = drupal_render($image_array); } } else if (isset($entity->field_story_photos['und'][0]['uri'])) { $image = theme('image_style', array('style_name' => 'blog_images', 'path' => $entity->field_story_photos['und'][0]['uri'])); } if (!empty($image)) { echo '
' . $image . '
'; } ?>

My mother was diagnosed over 3 years ago. She had other health issues that either helped the process along or were the cause of her final passing this last April. Like most she died from pneumonia, respiratory failure. When I was a teenager, as most daughters do at that age, I fought with my mother constantly. When I became a parent myself, we grew to be best friends. We did everything together and shared everything. The day my mother died from this horrible disease was both happy and sad. Happy that she was no longer trapped in a mind that confused and frightened her.

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Sons and Daughters

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