Featured Stories

  • Lisette C. - My Best Friend

  • Deborah B. - My Beautiful Mom

  • Heidi Hoyt - Caregiver Support: The Data Is In

  • Joyce H. - The Story of Edna P.

  • Brian S. - Dementia at Age 32

  • Max W. - From Child to Caregiver to Alzheimer's Researcher and Advocate

  • Karen G - Missing Jim

  • Enrique L. - U.S.M.C. Corporal

Your voice helps bring Alzheimer's out of the shadows.

Join our community of story tellers united in their determination to stop Alzheimer's! Share your personal story, a photo of a loved one, or a video telling us about your experience.

Together, we can show our leaders in Washington and beyond why we must make finding a cure for Alzheimer's a national priority!

Activists

My sister who was 32 and the mother of two beautiful girls was diagnosed with dementia at age 32. All of the doctors diagnosed her her with depression at first. I am a nurse and no my sister and would tell them it was not depression. After my tests, the found she had frontal temporal lobe dementia. Doctors don't look for it in young people because it is considered a old persons disease. Nursing homes would not take her because they said they didn't know what to do with her. She passed away at age 36 on 11/25/12, almost a year ago.

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Activists

My husband’s paternal grandparents were diagnosed with Alzheimer’s in 2010 after years of exhibiting signs.  More than losing their home and their independence, they lost themselves piece-by-piece as our family looked on, aching to stop the process.  Alzheimer’s is often called a “family disease,” and I can attest to the truth of this label—Alzheimer’s has devastated our family.  Last year, I was looking for ways to get active and participated in The Walk to End Alzheimer’s in Portsmouth, New Hampshire.  With the support of friends and family, I was able

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ActivistsGrandchildren

Although my intentions when I started this blog were to focus on running and working out, I feel a need to express my thoughts and feelings about the effects of Alzheimer's disease. I spend most of the time in denial and I keep thinking the tests (Pet Scan & Spec Scan) were wrong. But deep down I know they were correct. Most people associate a terminal disease with pain and suffering, or at least I do, so perhaps that is the reason I am in such denial. I have been through many phases over the last couple of years since my diagnosis. (continue reading here)

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People with Alzheimer'sActivists

Do you know what your grandfather looked like as a young man? Would you like to read – in his own words- about the smell of the apple orchard where he met your grandmother? What he felt when he first saw her, the color of her eyes, where they went on their first date? How about his long dangerous voyage from his homeland – how he felt when he stood on the deck of the ship and saw America for the first time? These are the details that slip through our fingers as history is passed from one generation to the next.

But not anymore.

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ActivistsGrandchildren

My husband disguised it well, but I knew.  I had known for the last seven or eight years.

Red was sixty-five and I was forty-seven. We had been married for sixteen years. The eighteen years between us never made a difference. His sense of humor, wit, intelligence, and gift of gab were incomparable, his laughter contagious. He was a knight in shining armor for me and for his family. He had always surpassed me mentally and physically. Until now…

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Spouses and PartnersActivists
Our Reality of Alzheimer's 2012

Toni made this moving and highly personal video about her family's experience caring for her mother who has Alzheimer's disease. Toni, her husband and four young children explain the facts and warning signs of Alzheimer's and their personal and often positive ways of coping with dementia.

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Sons and DaughtersActivists

My mother, Lillie, began showing signs of memory loss in 2008. In November of 2008 she received a pacemaker. For several months after receiving the pacemaker her memory was fine. About June of 2009, I began to notice that my mother's memory was on the decline again. I became so depressed I sought therapy. I was seeing three counselors. One was a Psychiatrist, the other a MFCC, and a Christian therapist at my church. The MFCC suggested that I join a support group for Alzheimer's caregivers.

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ActivistsSons and Daughters

My father, Patrick Johnston, passed away at the age of 79 on December 20, 2011. He began to show signs of dementia in 2007. As he moved into the middle and latter stages of Alzheimer's disease, he would wander, have hallucinations and was unable to dress himself and perform toileting duties.

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Sons and DaughtersActivists

My name is Bakhus S. Six months ago I placed my Mother in a retirement home. With Alzheimer's, I had been taking care of her for the past 7 yrs, she has been with me all my 52 yrs. When John and Michele Law (The Laws) had asked me to write a song about this from a caregivers view, I couldn't do it, 2 yrs ago when they had asked me. After placing my mom at the full care home the song that they asked me to write poured out of me.

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Sons and DaughtersActivists

FEELINGS OF MY MOM

This week I had committed to volunteering at a nursing home that was filled on one floor with dementia patients. I questioned myself why I was doing this, and thought of cancelling. My thoughts of course were about my mom who suffers with Alzheimer's disease . I did not truly understand why I would place myself in such an atmosphere, that would only bring up my feelings about my own mother. Yet I felt that since I made the commitment I needed to live up to it and at least go this one time.

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Sons and DaughtersActivists

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