Our Theory of Change
USAgainstAlzheimer’s theory of change is rooted in the strong belief that we, the American people, can create the national will to prevent and treat Alzheimer’s by pressuring our political, business and civic leaders to devote the necessary resources to outcomes-oriented research and to reform the drug development systems that currently slow the development and availability of promising treatments. We call this "leadership for the cure." And it works.
This is how:
- We are demanding an aggressive, transformative federal policy agenda to stop Alzheimer’s by 2020.
- We are building an army of activists whose insistence on a cure is palpable.
- We are providing a continuous stream of simple actions activists can take to advance the movement toward our ultimate goal.
- We are working as a network of individuals and organizations through new models of collaboration and movement-building.
- We are recruiting through the LEAD Coalition (Leaders Engaged on Alzheimer’s Disease) at least one million people by spring 2013 to demand that Alzheimer’s be stopped and to call for the successful implementation of the National Plan.
- We are educating public officials to recognize the urgency of this quest and the horrible consequences of inaction.
- We are driving innovation through leadership and partnership to accelerate Alzheimer’s prevention, care and cure.
The success of our work hinges on our strong relationships with Congress and our partnerships with leading researchers, academics, foundations, community-based organizations, philanthropists, health organizations and private funders who share our commitment to stopping this disease.
In two short years, we have achieved the following:
- Successfully persuaded the White House and U.S. Department of Health and Human Services to set a time-based goal to prevent and treat Alzheimer’s disease by 2025 and create a national plan to achieve that goal.
- Secured appointment as one of twelve non-governmental members of the Advisory Council on Alzheimer’s Research, Care and Services to advise on improvements to that plan.
- Leveraged personal and political relationships and a strong network of supporters to obtain commitments and proposals for an additional $169 million to fund Alzheimer’s research through the National Institutes of Health and the U.S Department of Defense.
- Successfully effected the introduction in Congress of legislation specifically aimed at accelerating the development of life-enhancing and lifesaving therapies for Alzheimer’s patients.
- Successfully advocated for the strengthening of Fast Track and Accelerated Review tools for the Food and Drug Administration to use for Alzheimer’s therapies.
- Established an online network of more than 60,000 supporters and the fastest-growing social media presence in the Alzheimer's field.
- Convened Leaders Engaged on Alzheimer’s Disease, a coalition of over 50 Alzheimer's-serving organizations including non-profits and for-profit companies.
- Organized ResearchersAgainstAlzheimer’s to serve as the unified voice for the scientific and research community on the value of additional resources for Alzheimer’s research.
- Helped organize a House Foreign Affairs subcommittee hearing exploring the global burden of Alzheimer’s disease.
Our Family of Organizations
USAgainstAlzheimer’s is a 501(c)(4) organization engaging in public advocacy, federal relations, grassroots activity and voter education.
USAgainstAlzheimer's Network is a 501(c)(3) organization connecting networks of organizations and individuals to take action to end Alzheimer’s by 2020, while providing the general public, policy leaders and the media with vital information about Alzheimer’s disease.
USAgainstAlzheimer’s PAC is an Alzheimer’s-centric political action committee that contributes to the campaigns of candidates supportive of Alzheimer’s issues.
We are moving forward with tremendous speed, success and momentum and are positioned to be a major catalyst in the effort to end Alzheimer’s disease. To further accelerate our progress and ensure Alzheimer’s receives the national attention it deserves, we are building networks of influencers and activists, initially in five categories: Activists, African Americans, Latinos, women, and researchers. Each network includes a target audience, its own unique programming and staff support. In time, we will add other networks of affected groups.
Capitalizes and builds on the energies of highly-motivated Alzheimer’s activists, who are on the frontlines of efforts in their communities or nationally. Members of the Network help us build a more wide-spread movement by serving as ambassadors in their communities and bringing others into the fight to end Alzheimer’s.
Engages individuals and organizations to act as the preeminent voice in and for the African American community on the issue of Alzheimer’s disease and its disparate impact on African Americans.
Is a diverse, multi-faith national network of ordained clergy working collaboratively to focus our nation’s attention on Alzheimer’s disease and related dementias.
Raises the profile of Alzheimer’s disease and it’s disparate impact on Latinos, the most rapidly growing segment of the American electorate.
Increases awareness about Alzheimer’s disease and advocates for more research funding and reforms.
Gives voice to women who bear the major burden of the Alzheimer’s crisis and arms women with the information and easy-to-use connections needed to be heard in Washington, in state capitals, by industry leaders and the research community.