Before I forget.

Written by Trish Vradenburg and Special Guests

By 2020 Blog

January 10, 2017 - Karen Garner

Last year, my husband, Jim, lost his 7-year battle with early-onset Alzheimer’s disease. He was just 53 years old. It hurt to spend the holidays without him. But as I reflect on the most difficult year of my life, I’m filled with gratitude for all those who find the strength to keep fighting this devastating disease.

December 19, 2016 - Ann Napoletan

When my mother was alive, every year as the holidays approached I found myself struggling to come up with gift ideas for her. She was living with Alzheimer’s, and I wanted to get something useful that she would enjoy. Not something that would end up in a drawer or closet never to be seen again. However, as her dementia progressed, the options dwindled, requiring more and more creativity.

December 13, 2016 - Trish Vradenburg

The recent announcement by Eli Lilly that a new drug intended to slow memory loss in people with Alzheimer’s had failed a late-stage clinical trial felt like a punch in the gut. Look, I know that finding a treatment for dementia is a complex, Herculean task. But I was so sure that this time it was going to happen. And when it didn’t, I knew the devastation that the thousands of people who volunteered for this clinical trial must have felt, as well as the dedicated Eli Lilly researchers and all those who’d devoted their time and energy to crushing this relentless killer.

December 12, 2016 - Ann Napoletan

When your loved one is living with dementia, the holidays are bound to change. While this can feel very sad and like a loss, it doesn’t have to be a bad thing. With each stage, consider creating new traditions or modifying old ones in a way that allows you to meet your loved one right where they are. My mom was always the center of our holiday celebrations. For as long as I remembered, she prepared a smaller version of the Italian Feast of Seven Fishes on Christmas Eve. She made it look so effortless - I think she could have whipped up that beautiful spread in her sleep!

December 5, 2016 - Karen Segal

UsAgainstAlzheimer's and I are grateful to Veronica Beard for including us as part of the #VBGIVESBACK program. Veronica Beard will donate $10 of every VeronicaBeard.com order in December to the cause. My mother was diagnosed with Alzheimer's disease in 2002 and I learned firsthand how challenging it is to juggle family life and caring for my mother.

November 29, 2016 - Loretta Woodward Veney

When my mom was diagnosed with dementia, I started writing down things that she said or asked.

At first it was a way to hold onto the memories she was losing. But as the disease progressed, I’ve seen how her wisdom and humor continue to shine through the darkness of Alzheimer’s disease. Living in the moment is a challenge for all of us facing this disease, alongside loved ones stuck between the disappearing past and the uncertain future.

November 7, 2016 - Trish Vradenburg

My mother - Bea Lerner - was diagnosed with Alzheimer’s disease in 1987. At the time, I barely knew what the disease was. What I did know is there was no cure. I thought my mom was invincible, but she was no match for Alzheimer’s. I watched helplessly as her mind, her dignity, her soul and finally her body succumbed to this killer. In just a few short years she disappeared into the unforgiving chasm of this deadly disease. (Continue reading on Huffington Post.)

October 14, 2016 - Dr. Daniel C. Potts

I want to thank George and Trish Vradenburg for channeling hope through heartache, guiding us in the impassioned mission to find a cure for Alzheimer's disease. Your fervent leadership is helping to usher in a time of unprecedented progress, and promising developments are reported weekly. This would be impossible without the major increase in funding you have helped to secure.

September 7, 2016 - Elizabeth Plant

UsAgainstAlzheimer’s mission is to end Alzheimer’s by 2020. We fight for increased investment in research; greater collaboration across industry, science and government; acceleration of clinical trials; and improved quality of life for people living with dementia and their caregivers.

August 24, 2016 - Ann Napoletan

“Together we can magnify our voice. Validate our journey. Help others too.”   ~Meryl Comer, Caregiver, Advocate, and President, Geoffrey Beene Foundation Alzheimer’s Initiative

So often, we, as caregivers, feel isolated, alone, and misunderstood. We talk, but is anyone really listening? Does anyone even care what we have to say?

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